Families of Children Treated for Rare Diseases Say Long-Term Care Falls Short
A Dutch study of 70 families finds strong clinician relationships but persistent gaps in long-term information, psychosocial support and care ...
Tag: rare diseases
What Patients and Societies Really Think About Million-Dollar Gene Therapies
A new Gene Therapy article synthesizes evidence on how patients, consumers and societies value, perceive and prefer high-cost gene therapies ...
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Mothers who receive childcare support from maternal grandparents show more parental warmth, finds NTU Singapore study
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University of Seville Breaks 120-Year-Old Mystery, Revises a Key Einstein Concept
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Bee body mass, pathogens and local climate influence heat tolerance
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Researchers record first-ever images and data of a shark experiencing a boat strike
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Groundbreaking Clinical Trial Reveals Lubiprostone Enhances Kidney Function
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