Europe’s Clinical Trials Have Fallen 13.5% Since the Pandemic, Landmark Analysis Finds
The first unified analysis of EU/EEA clinical trial registries reveals a 13.5% decline in annual trial authorisations since 2022, driven ...
Tag: rare diseases
Six Experts Map the Future of Rare Metabolic Disease Research
Six leading researchers outline the opportunities, challenges and emerging priorities for advancing research and therapy development in rare metabolic diseases.
Nonprofit Accelerator Commits $1.7 Million to Five Projects Targeting Blindness, Sepsis and Rare Disease
Critical Path Institute's Translational Therapeutics Accelerator has awarded nearly $1.7 million across five BRIDGe grants to advance therapies for neuropathic ...
European Survey Reveals Deep Gaps in Training for Rare Bone and Mineral Diseases
A survey of 69 European Reference Network health care providers across 20 member states reveals major gaps in specialist education ...
Safer Sirolimus Dosing for Children with Vascular Anomalies, New Study Finds
A new study quantifies the link between sirolimus blood levels and adverse reactions in children with vascular anomalies, defining individualized ...
Families of Children Treated for Rare Diseases Say Long-Term Care Falls Short
A Dutch study of 70 families finds strong clinician relationships but persistent gaps in long-term information, psychosocial support and care ...
What Patients and Societies Really Think About Million-Dollar Gene Therapies
A new Gene Therapy article synthesizes evidence on how patients, consumers and societies value, perceive and prefer high-cost gene therapies ...
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Mothers who receive childcare support from maternal grandparents show more parental warmth, finds NTU Singapore study
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University of Seville Breaks 120-Year-Old Mystery, Revises a Key Einstein Concept
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Bee body mass, pathogens and local climate influence heat tolerance
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Researchers record first-ever images and data of a shark experiencing a boat strike
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Groundbreaking Clinical Trial Reveals Lubiprostone Enhances Kidney Function
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