Genetic Testing Reveals Hidden Gaps in Care for Women at High Breast Cancer Risk
A new survey of nearly 1,000 women with hereditary breast cancer susceptibility genes reveals that financial and emotional support services ...
Tag: patient advocacy
Patient Voices Take Center Stage as Bronchiectasis Community Plans Landmark FDA Drug Development Meeting
The Bronchiectasis and NTM Association has announced an Externally-Led Patient-Focused Drug Development meeting for non-cystic fibrosis bronchiectasis, proposed for late ...
Teaching Cancer Advocates the Science of Evidence Boosts Their Power to Push for Better Care
A quasi-experimental program in Chile called "Lidera con Ciencia" measurably improved scientific knowledge among leaders of cancer patient organizations, pointing ...
A Father’s Two-Decade Journey Through Duchenne Muscular Dystrophy Reshapes What Research Means
A new Pediatric Research reflection by Alex Smith traces nearly twenty years of living alongside his son Harrison's Duchenne muscular ...
Words as Medicine: Physician-Turned-Patient Reveals the Healing Power of Clinical Communication
Physician and longtime cancer patient Dr. Wendy Harpham argues that clinicians' words can comfort, motivate, and heal as powerfully as ...
Rare Disease Patients Turn Lived Experience Into a Blueprint for Better Research
Two women living with the rare skin condition Congenital Melanocytic Naevus argue in PLOS Medicine that patient partnership must shape ...
Three NHS Genetics Labs Fail to Share Variant Data Vital for Rare Disease Diagnosis
A BMJ investigation finds that three of England's seven NHS genetics laboratories are failing to routinely submit genetic variants to ...
NCCN Summit Puts Cancer Prevention and Screening at the Heart of Health Policy
The National Comprehensive Cancer Network's two-day Oncology Policy Summit in Washington, D.C. united leaders from the NCI, CDC, and advocacy ...
Community Health Workers Emerge as a Powerful Antidote to Racism in Hospital Care
A hospital program embedding a Black community health worker on medicine wards improved trust and communication for Black patients while ...
Living With Relapsed Multiple Myeloma: A Patient’s Journey Through Talquetamab and Team-Based Care
A new first-person perspective in Advances in Therapy follows a music professor through repeated myeloma relapses to talquetamab therapy, revealing ...
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Mothers who receive childcare support from maternal grandparents show more parental warmth, finds NTU Singapore study
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University of Seville Breaks 120-Year-Old Mystery, Revises a Key Einstein Concept
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Bee body mass, pathogens and local climate influence heat tolerance
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Researchers record first-ever images and data of a shark experiencing a boat strike
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Groundbreaking Clinical Trial Reveals Lubiprostone Enhances Kidney Function
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