Registry Studies Rarely Test How Missing Patient Data Could Reverse Their Findings
A scoping review of 61 registry-based PROM studies found no reported tipping-point analyses and only one delta adjustment, prompting a ...
Tag: patient registries
Who Counts? Single-Center Audit Probes Whether a National Psoriasis Registry Truly Reflects Real Patients
Researchers compared the national FORWARD psoriasis registry against a single academic institution's electronic medical records to test whether its voluntary, ...
Rare Disease Patients Turn Lived Experience Into a Blueprint for Better Research
Two women living with the rare skin condition Congenital Melanocytic Naevus argue in PLOS Medicine that patient partnership must shape ...
Six Experts Map the Future of Rare Metabolic Disease Research
Six leading researchers outline the opportunities, challenges and emerging priorities for advancing research and therapy development in rare metabolic diseases.
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Mothers who receive childcare support from maternal grandparents show more parental warmth, finds NTU Singapore study
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University of Seville Breaks 120-Year-Old Mystery, Revises a Key Einstein Concept
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Bee body mass, pathogens and local climate influence heat tolerance
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Researchers record first-ever images and data of a shark experiencing a boat strike
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Groundbreaking Clinical Trial Reveals Lubiprostone Enhances Kidney Function
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