<?xml version="1.0" encoding="UTF-8"?><rss version="2.0"
	xmlns:content="http://purl.org/rss/1.0/modules/content/"
	xmlns:wfw="http://wellformedweb.org/CommentAPI/"
	xmlns:dc="http://purl.org/dc/elements/1.1/"
	xmlns:atom="http://www.w3.org/2005/Atom"
	xmlns:sy="http://purl.org/rss/1.0/modules/syndication/"
	xmlns:slash="http://purl.org/rss/1.0/modules/slash/"
	>

<channel>
	<title>survivorship care standards &#8211; Science</title>
	<atom:link href="https://scienmag.com/tag/survivorship-care-standards/feed/" rel="self" type="application/rss+xml" />
	<link>https://scienmag.com</link>
	<description></description>
	<lastBuildDate>Fri, 02 Oct 2026 10:15:59 +0000</lastBuildDate>
	<language>en-US</language>
	<sy:updatePeriod>
	hourly	</sy:updatePeriod>
	<sy:updateFrequency>
	1	</sy:updateFrequency>
	<generator>https://wordpress.org/?v=7.1.2</generator>

<image>
	<url>https://scienmag.com/wp-content/uploads/2024/07/cropped-scienmag_ico-32x32.jpg</url>
	<title>survivorship care standards &#8211; Science</title>
	<link>https://scienmag.com</link>
	<width>32</width>
	<height>32</height>
</image> 
<site xmlns="com-wordpress:feed-additions:1">73899611</site>	<item>
		<title>Rural Cancer Patients Embrace Digital Care, Challenging Assumptions About the Telehealth Divide</title>
		<link>https://scienmag.com/rural-cancer-patients-embrace-digital-care-challenging-assumptions-about-the-telehealth-divide/</link>
		
		<dc:creator><![CDATA[Nathaniel Bowman]]></dc:creator>
		<pubDate>Fri, 02 Oct 2026 10:15:59 +0000</pubDate>
				<category><![CDATA[Cancer]]></category>
		<category><![CDATA[barriers and facilitators of telehealth in rural oncology]]></category>
		<category><![CDATA[Behavioral Health]]></category>
		<category><![CDATA[cancer survivorship]]></category>
		<category><![CDATA[cancer survivorship and virtual care]]></category>
		<category><![CDATA[comprehensive study of digital health in rural cancer populations]]></category>
		<category><![CDATA[demographic factors influencing telehealth in rural areas]]></category>
		<category><![CDATA[digital health]]></category>
		<category><![CDATA[digital health preferences of rural cancer patients]]></category>
		<category><![CDATA[digital health readiness]]></category>
		<category><![CDATA[health care access]]></category>
		<category><![CDATA[health equity]]></category>
		<category><![CDATA[impact of broadband access on rural telehealth]]></category>
		<category><![CDATA[mixed methods]]></category>
		<category><![CDATA[oncology]]></category>
		<category><![CDATA[patient portal utilization in rural cancer care]]></category>
		<category><![CDATA[patient portals]]></category>
		<category><![CDATA[rural cancer patient digital health engagement]]></category>
		<category><![CDATA[rural health]]></category>
		<category><![CDATA[rural health disparities in digital oncology services]]></category>
		<category><![CDATA[rural oncology telemedicine adoption]]></category>
		<category><![CDATA[survivorship care standards]]></category>
		<category><![CDATA[telehealth]]></category>
		<category><![CDATA[telehealth policy implications for rural cancer treatment]]></category>
		<category><![CDATA[telehealth use among rural cancer survivors]]></category>
		<guid isPermaLink="false">https://scienmag.com/?p=227103</guid>

					<description><![CDATA[A mixed-methods study of nearly 8,800 cancer survivors at a rural comprehensive cancer center found high engagement with patient portals and telehealth, contradicting assumptions that rural patients are digitally disengaged and revealing strong interest in digital survivorship services.]]></description>
										<content:encoded><![CDATA[<p>One of the most persistent assumptions in American oncology is that rural patients, by and large, cannot or will not use digital health services. The stereotype paints a picture of patchy broadband, older patients wary of screens, and health systems that must choose between high-touch in-person care and a digital frontier that leaves rural communities behind. A new study from Dartmouth Cancer Center, published in the Journal of Cancer Survivorship, upends that narrative with unusually granular evidence. Among nearly 8,800 cancer survivors treated at a rural comprehensive cancer center, 80 percent lived in rural areas, yet 81 percent maintained an active patient portal account and 38 percent had completed at least one telehealth visit. Far from being digitally disengaged, these survivors were already using virtual tools at rates that surprised even the researchers, and they expressed clear enthusiasm for expanding digital services across the survivorship continuum.</p>
<p>The study, led by Christine M. Gunn of The Dartmouth Institute for Health Policy and Clinical Practice, took a deliberately comprehensive approach. The research team identified all adults diagnosed with solid tumors between 2022 and 2024 who received treatment at Dartmouth Cancer Center locations, assembling a cohort of 8,772 patients. From electronic health records, they extracted demographics, visit patterns, referrals, and questionnaire responses, building a quantitative portrait of how this predominantly rural population actually interacts with digital care. On top of that record-based analysis, the team sent a survey to a random sample of patients stratified by tumor type, probing digital health readiness, service use, satisfaction, and appetite for digital programming. The survey yielded 207 respondents, whose answers were summarized descriptively to capture the shape of demand for virtual services.</p>
<p>The numbers that emerged from the health record tell a story of selective, specialty-dependent telehealth adoption. Behavioral health stood out dramatically: 76 percent of behavioral health visits were delivered via telehealth, making virtual care the dominant modality for mental health support in this population. Cancer-directed specialties, by contrast, delivered fewer than 5 percent of their visits through telehealth. That split is revealing. It suggests that when patients face barriers to accessing behavioral health services, whether transportation, scheduling, stigma, or distance, telehealth becomes a lifeline they readily adopt. But when it comes to oncology appointments themselves, where physical examination, infusion coordination, and established relationships with medical teams matter, both clinicians and patients have largely stayed with in-person care. Digital adoption, in other words, is not a binary trait of a population but a function of what each service demands and what each patient needs.</p>
<p>Survey responses reinforced the picture of engaged but selective users. Among the 207 respondents, 42 percent reported using a patient portal often or always to manage their care, a substantial share for any patient population, rural or urban. Perhaps the most methodologically interesting finding concerned digital health readiness, a construct measured with validated instruments that assess patients&#8217; comfort, skills, and infrastructure for engaging with digital tools. The researchers expected readiness scores to predict who used the portal and who wanted more digital services. Instead, digital health readiness was not associated with either portal use or interest in digital offerings. That null result carries real weight: it implies that interest in virtual survivorship care is broad-based rather than confined to the digitally fluent, and that screening patients for digital readiness may not identify who will benefit from digital programs.</p>
<p>To understand why patients wanted digital services, and what they hoped those services would accomplish, the team turned to qualitative methods. Twenty-five survivors completed in-depth interviews about their care experiences and unmet needs, and the researchers analyzed the transcripts using framework analysis, a structured qualitative approach that organizes data into predefined and emergent themes. The interviews surfaced four consistent ways survivors believed digital services would enhance their care: facilitating communication with care teams, improving access to behavioral health support, enabling social support connections, and providing flexibility in choosing visit modality. For survivors juggling work, family obligations, and long drives to regional cancer centers, the ability to choose between a video visit and an in-person appointment was not a luxury but a practical necessity that could determine whether recommended follow-up happened at all.</p>
<p>The stakes of that flexibility become clear when set against the well-documented barriers rural cancer survivors face. Prior research cited by the authors documents transportation burdens as a major obstacle to cancer care delivery in rural populations, along with rural-urban disparities in financial hardship among survivors. Loss to follow-up is a chronic problem across oncology: survivors of breast, colorectal, head and neck, and hematopoietic cell transplantation all show elevated rates of falling out of guideline-recommended surveillance, and distance amplifies that risk. Survivorship care, the phase after curative treatment ends, is precisely when patients are most likely to drift away from the health system, even as they face long-term and late effects of their disease and its treatment. If digital services can keep rural survivors connected during this vulnerable window, the potential payoff in adherence to surveillance and management of late effects is considerable.</p>
<p>The study arrives at a moment when the policy architecture of survivorship care is being rebuilt. National standards for cancer survivorship care have recently been developed through a consensus process, and health systems are now being assessed against criteria that expect coordinated, patient-centered follow-up. The authors argue that systems capable of delivering integrated digital services supporting monitoring during survivorship will be best positioned to meet those standards while providing high-quality care to geographically dispersed patients. The Dartmouth findings suggest that the raw material for such integration, an engaged patient population already comfortable with portals and telehealth, exists even in rural settings. What remains is the harder work of designing digital survivorship programs that fit clinical workflows and patient preferences rather than simply porting in-person services onto a video platform.</p>
<p>The authors are careful about what their data cannot yet answer. Preferences for digital care delivery, they note, likely shift across the continuum of survivorship, from the early period after diagnosis through posttreatment transition and into long-term follow-up, and further research is needed to map those evolving priorities explicitly. They also point to an emerging frontier: as patients increasingly use digital tools for information seeking, decision-making, and personal health monitoring, the interface between consumer-generated health data and clinical records will demand new technical and organizational solutions. The broader literature on digital determinants of health and on digital navigation programs in safety-net systems suggests that structured support, such as digital health navigators who help patients set up and use virtual tools, may be one mechanism for ensuring that expanded digital offerings do not inadvertently widen inequities within rural populations.</p>
<p>What makes this study resonate beyond New Hampshire and Vermont is its challenge to a design assumption embedded in countless digital health initiatives: that rural equals disconnected. The evidence here, drawn from a large cohort, a stratified survey, and qualitative interviews, shows high engagement with telehealth and genuine appetite for digital survivorship programming among a population that is 80 percent rural. Behavioral health&#8217;s near-total shift to virtual delivery demonstrates that when telehealth removes a real barrier, patients use it enthusiastically. The absence of a link between measured digital readiness and actual engagement suggests that gatekeeping digital services by readiness scores may be misguided. For cancer centers serving rural regions, and for the national standards now shaping survivorship care, the message is that augmenting in-person services with well-designed digital programming is not a speculative bet on patient behavior. The patients, the data suggest, are already there.</p>
<p><strong>Subject of Research:</strong> Digital health service use and survivorship care preferences among rural cancer survivors</p>
<p><strong>Article Title:</strong> A mixed-methods study characterizing patient experiences with digital survivorship services and preferences for care at a rural cancer center</p>
<p><strong>Article References:</strong> Gunn, C. M., Gallagher, L. G., Angelo, M. S., Purvis, L. A., Sykes, C., &amp; Kuhn, E. S. (2026). A mixed-methods study characterizing patient experiences with digital survivorship services and preferences for care at a rural cancer center. <em>Journal of Cancer Survivorship</em>. <a href="https://doi.org/10.1007/s11764-026-02127-w" rel="noopener noreferrer">https://doi.org/10.1007/s11764-026-02127-w</a></p>
<p><strong>Image Credits:</strong> AI Generated</p>
<p><strong>DOI:</strong> <a href="https://doi.org/10.1007/s11764-026-02127-w" rel="noopener noreferrer">10.1007/s11764-026-02127-w</a></p>
<p><strong>Keywords:</strong> cancer survivorship, digital health, telehealth, rural health, patient portals, behavioral health, mixed methods, health care access, survivorship care standards, digital health readiness, oncology, health equity</p>
]]></content:encoded>
					
		
		
		<post-id xmlns="com-wordpress:feed-additions:1">227103</post-id>	</item>
		<item>
		<title>How Do You Measure Whether Cancer Centers Meet New Survivorship Care Standards?</title>
		<link>https://scienmag.com/how-do-you-measure-whether-cancer-centers-meet-new-survivorship-care-standards/</link>
		
		<dc:creator><![CDATA[Nathaniel Bowman]]></dc:creator>
		<pubDate>Fri, 02 Oct 2026 07:51:04 +0000</pubDate>
				<category><![CDATA[Cancer]]></category>
		<category><![CDATA[assessing cancer care program compliance]]></category>
		<category><![CDATA[cancer care quality]]></category>
		<category><![CDATA[cancer survivorship]]></category>
		<category><![CDATA[cancer survivorship care measurement challenges]]></category>
		<category><![CDATA[cancer survivorship care standards]]></category>
		<category><![CDATA[care processes]]></category>
		<category><![CDATA[electronic health records]]></category>
		<category><![CDATA[evaluating quality of cancer survivorship services]]></category>
		<category><![CDATA[health care delivery]]></category>
		<category><![CDATA[health systems]]></category>
		<category><![CDATA[healthcare quality assessment for cancer survivors]]></category>
		<category><![CDATA[implementation of cancer care standards]]></category>
		<category><![CDATA[implementation science]]></category>
		<category><![CDATA[improving cancer survivorship outcomes]]></category>
		<category><![CDATA[measurement infrastructure]]></category>
		<category><![CDATA[measuring effectiveness of cancer survivor programs]]></category>
		<category><![CDATA[national benchmarks for survivorship care]]></category>
		<category><![CDATA[National Cancer Institute]]></category>
		<category><![CDATA[national standards for cancer follow-up care]]></category>
		<category><![CDATA[patient-reported outcomes]]></category>
		<category><![CDATA[post-treatment cancer survivor support]]></category>
		<category><![CDATA[quality measurement]]></category>
		<category><![CDATA[research on cancer survivorship standards]]></category>
		<category><![CDATA[survivorship care standards]]></category>
		<guid isPermaLink="false">https://scienmag.com/?p=226498</guid>

					<description><![CDATA[A new analysis of 18 National Cancer Institute funded pilot projects reveals that most measurement tools for the 2024 National Standards for Survivorship Care focus on whether care elements exist rather than how well they are delivered, exposing critical gaps in the field's measurement infrastructure.]]></description>
										<content:encoded><![CDATA[<p>More than 18 million people in the United States are living with a history of cancer, and that number continues to climb as treatments improve and the population ages. Yet the care these survivors receive after treatment ends has long been inconsistent, fragmented, and difficult to evaluate. In 2024, the National Cancer Institute took a major step toward fixing that problem by releasing the first National Standards for Cancer Survivorship Care, a set of aspirational recommendations designed to guide health systems as they build and refine services for survivors. But a standard is only as powerful as the ability to measure whether it is being met, and a new study published in the Journal of Cancer Survivorship reveals just how complicated that measurement challenge turns out to be.</p>
<p>The study, led by Sara A. Flores, Rachelle Brick, and Sallie J. Weaver of the National Cancer Institute&#8217;s Healthcare Delivery Research Program, together with Michelle Doose of the institute&#8217;s Behavioral Research Program, examined a unique natural experiment. Following the release of the standards, the NCI funded 18 supplemental research projects across the country with a twofold mission: to assess how well existing survivorship services and programs aligned with the new standards, and to identify the barriers and facilitators that shape implementation. Because each project team independently developed its own approach to measuring alignment, the resulting portfolio offered researchers an unprecedented window into how the field actually operationalizes the standards when left to its own devices.</p>
<p>To make sense of this diversity, the research team conducted a systematic synthesis of the measurement tools used across the funded projects. Trained abstractors applied a standardized codebook to extract detailed characteristics at both the project level and the measure level, including which specific national standards were assessed, what types of data were collected, which methods were used, and who the respondents were. Fourteen of the 18 projects ultimately contributed materials to the analysis, yielding a total of 91 distinct measurement tools spanning surveys, interview protocols, environmental scan protocols, and variables drawn from electronic health records and administrative data.</p>
<p>The first striking finding concerns which parts of the standards attracted the most measurement attention. The 2024 National Standards are organized into three domains: policy, processes, and evaluation and assessment. When the researchers categorized the 91 tools, they found that the overwhelming majority, 82.4 percent, addressed the health system process standards, which describe how survivorship care should actually be delivered to patients. By contrast, only 31.9 percent of tools addressed health system policy standards, which concern the organizational structures and commitments that underpin survivorship programs, and a mere 15.4 percent addressed the evaluation and assessment standards, which call on systems to monitor and improve their own performance.</p>
<p>This imbalance matters because the three domains are conceptually interdependent. Policy standards create the institutional scaffolding, such as leadership support and dedicated resources, that allows process standards to be implemented sustainably. Evaluation standards, in turn, generate the feedback loops that tell a health system whether its processes are working and for whom. A measurement landscape dominated by process checks risks producing a skewed picture of alignment, one in which a cancer center might appear to be delivering survivorship services while lacking the governance and self-assessment infrastructure to sustain or improve them. The authors suggest that this pattern likely reflects both the relative concreteness of process standards and the practical difficulty of writing tools for abstract organizational commitments.</p>
<p>The second major finding concerns the depth of measurement rather than its breadth. When the team classified what each tool actually captured, they found that 72.5 percent assessed the existence or occurrence of care elements, essentially yes-or-no questions about whether something happens. Does the program have a survivorship care plan? Was a referral made? Did a visit occur? Far less commonly captured was the quality or degree to which a standard was met, or how care processes actually unfolded in practice. This distinction is fundamental to quality measurement. Knowing that a service exists says nothing about whether it is timely, appropriate, equitable, or responsive to patient needs, and the study&#8217;s findings suggest that the field&#8217;s current toolkit is far better at detecting presence than at judging performance.</p>
<p>The methodological diversity documented in the study is itself informative. The 91 tools ranged from validated patient-reported outcome instruments to bespoke interview guides and electronic health record queries, reflecting the absence of any shared, ready-made measurement approach at the time the standards were released. This kind of grassroots innovation is valuable, but it comes at a cost: without common operational definitions, findings from one health system cannot be directly compared with those from another, and the field cannot aggregate local insights into a national picture of survivorship care quality. The problem echoes well-documented challenges in hospital accreditation research, where measuring the effects of complex, system-level interventions has proven notoriously difficult, and in quality measurement more broadly, where misalignment across state and regional measure sets has long hampered comparison.</p>
<p>The study&#8217;s implications reach beyond survivorship care into the broader science of implementation. Implementation researchers have long argued that strong measurement infrastructure is a prerequisite for learning health systems, in which care delivery continuously improves through the systematic collection and use of data. The NCI supplement portfolio demonstrates both the promise and the peril of funding implementation pilots ahead of measurement standardization. On one hand, the projects generated a rich, ground-level understanding of how diverse cancer care delivery settings interpret the standards and what barriers they face. On the other hand, the heterogeneity of the resulting tools means that synthesizing those insights requires exactly the kind of labor-intensive coding exercise this study performed, and some information may resist aggregation altogether.</p>
<p>The authors point toward several concrete opportunities for strengthening the measurement foundation. Chief among them is the development of shared operational definitions for each standard, phrased concretely enough to be applied consistently across settings that range from large academic cancer centers to community oncology practices. Such definitions would need to accommodate legitimate variation in how survivorship care is organized while preserving the core intent of each recommendation. The team also highlights the value of measures that move beyond existence checks toward assessments of quality and fidelity, drawing on established frameworks for evaluating health care quality and on growing experience with electronic clinical data standards that make process measurement more feasible at scale.</p>
<p>For the growing community of cancer survivors and the clinicians who care for them, the stakes of this seemingly technical work are substantial. Survivorship care encompasses surveillance for recurrence, management of late and long-term treatment effects, attention to psychosocial wellbeing, and coordination among many providers, often over decades. Standards that exist only on paper cannot close the well-documented gaps in how this care is delivered, and gaps that cannot be measured cannot be systematically addressed. By mapping how the first wave of implementation projects measured alignment with the 2024 National Standards for Survivorship Care, this study provides the field with an honest self-portrait: a committed and creative research community that has, so far, been measuring the easiest things most often. The path forward, the authors argue, lies in building the shared measurement infrastructure that will let every cancer care setting see clearly where it stands, and where it needs to go, in serving the millions of Americans who live beyond a cancer diagnosis.</p>
<p><strong>Subject of Research:</strong> Measurement of alignment with the 2024 National Standards for Cancer Survivorship Care across NCI-funded implementation projects</p>
<p><strong>Article Title:</strong> Measuring uptake of the 2024 national standards for survivorship care: Insights from National Cancer Institute funded pilot projects</p>
<p><strong>Article References:</strong> Flores, S. A., Doose, M., Brick, R., &amp; Weaver, S. J. (2026). Measuring uptake of the 2024 national standards for survivorship care: Insights from National Cancer Institute funded pilot projects. <em>Journal of Cancer Survivorship</em>. <a href="https://doi.org/10.1007/s11764-026-02130-1" rel="noopener noreferrer">https://doi.org/10.1007/s11764-026-02130-1</a></p>
<p><strong>Image Credits:</strong> AI Generated</p>
<p><strong>DOI:</strong> <a href="https://doi.org/10.1007/s11764-026-02130-1" rel="noopener noreferrer">10.1007/s11764-026-02130-1</a></p>
<p><strong>Keywords:</strong> cancer survivorship, survivorship care standards, National Cancer Institute, quality measurement, health care delivery, implementation science, electronic health records, care processes, health systems, measurement infrastructure, cancer care quality, patient-reported outcomes</p>
]]></content:encoded>
					
		
		
		<post-id xmlns="com-wordpress:feed-additions:1">226498</post-id>	</item>
		<item>
		<title>Head and Neck Cancer Survivors Get Specialist Care, but Records Miss the Rest</title>
		<link>https://scienmag.com/head-and-neck-cancer-survivors-get-specialist-care-but-records-miss-the-rest/</link>
		
		<dc:creator><![CDATA[Nathaniel Bowman]]></dc:creator>
		<pubDate>Fri, 02 Oct 2026 00:35:34 +0000</pubDate>
				<category><![CDATA[Cancer]]></category>
		<category><![CDATA[advances in head and neck cancer therapies]]></category>
		<category><![CDATA[cancer care delivery]]></category>
		<category><![CDATA[cancer survivorship]]></category>
		<category><![CDATA[cancer survivorship and long-term health management]]></category>
		<category><![CDATA[challenges in post-treatment follow-up]]></category>
		<category><![CDATA[comorbidities in cancer survivors]]></category>
		<category><![CDATA[comorbidity]]></category>
		<category><![CDATA[electronic health records]]></category>
		<category><![CDATA[gaps in medical record documentation]]></category>
		<category><![CDATA[head and neck cancer]]></category>
		<category><![CDATA[Head and neck cancer survivor care]]></category>
		<category><![CDATA[Health disparities]]></category>
		<category><![CDATA[health services research]]></category>
		<category><![CDATA[health system responsiveness to cancer survivor needs]]></category>
		<category><![CDATA[impact of tobacco and alcohol on head and neck cancers]]></category>
		<category><![CDATA[importance of comprehensive survivorship care plans]]></category>
		<category><![CDATA[informatics]]></category>
		<category><![CDATA[multidisciplinary cancer treatment approaches]]></category>
		<category><![CDATA[patient-reported outcomes]]></category>
		<category><![CDATA[rehabilitation]]></category>
		<category><![CDATA[research on cancer survivorship care quality]]></category>
		<category><![CDATA[rural health]]></category>
		<category><![CDATA[survivorship care standards]]></category>
		<guid isPermaLink="false">https://scienmag.com/?p=224602</guid>

					<description><![CDATA[A two-part study of a Texas academic health system finds that clinicians perceive broad head and neck cancer survivorship services, yet electronic health records document care concentrated in specialist and rehabilitation visits, with no rural-urban differences in utilization.]]></description>
										<content:encoded><![CDATA[<p>Every year in the United States, roughly 72,770 people are diagnosed with cancers of the mouth, throat, voice box, and other structures of the upper aerodigestive tract, and about 17,110 die from the disease. Thanks to advances in surgery, radiation, and chemotherapy, between 63 and 70 percent of these patients now survive at least five years, bringing the national population of head and neck cancer survivors to more than half a million people. Survival, however, comes at a price. Because tobacco and alcohol are leading causes of these tumors, many patients arrive at diagnosis already burdened with heart disease, diabetes, or chronic lung disease, and up to 83 percent develop a new comorbidity within five years. A new study published in the Journal of Cancer Survivorship takes an unusually honest look at whether the health system is keeping up with this wave of long-term need, and its findings reveal a striking gap between what clinicians believe they deliver and what the medical record actually shows.</p>
<p>The research, led by Janet H. Van Cleave of UTHealth Houston Cizik School of Nursing together with colleagues across several institutions, examined survivorship care for head and neck cancer patients at a large academic health system in Southeast Texas. The system serves a thirteen-county catchment area that includes rural, suburban, and urban populations across fourteen academic and community hospitals, making it an ideal natural laboratory for asking whether geography shapes access to follow-up care. The team used two complementary methods. First, they surveyed fifteen clinicians and health system administrators involved in head and neck cancer care, asking them to rate how well their institution&#8217;s services matched the newly released National Standards for Cancer Survivorship Care. Second, they mined the electronic health records of 438 patients diagnosed between January 2022 and June 2024, counting every documented encounter in the first year after diagnosis.</p>
<p>The National Standards for Cancer Survivorship Care, developed in 2024 by the National Cancer Institute in partnership with the Department of Veterans Affairs and other federal agencies, organize survivorship care into three categories: policies, which define an organization&#8217;s capacity and structure; processes, which describe its ability to deliver care through embedded practices; and assessments, which measure the impact of that care. The survey asked participants to rate each standard on a four-point scale from not present to highly present, and the researchers converted these ratings into modified kappa scores, a statistical measure of agreement that corrects for chance. The results were revealing. Processes scored a respectable 0.60, indicating that clinicians perceived the system&#8217;s day-to-day delivery of survivorship services as reasonably well aligned with national expectations. Policies and assessments, by contrast, scored only 0.28 and 0.29 respectively, suggesting that the formal scaffolding needed to sustain and measure that care is far weaker.</p>
<p>Within those averages, individual standards told a more nuanced story. The highest-rated item, with a modified kappa of 0.93, was the assessment of risk for recurrence or new cancers, including family history and genetic testing with appropriate surveillance recommendations. Access to specialty services for managing late effects such as cardiovascular problems scored 0.87, and referrals to supportive services including nutrition, rehabilitation, and dental care scored 0.72. At the opposite extreme, the lowest-rated standard, a mere 0.07, was the collection of longitudinal data on survivors&#8217; experiences and patient-reported outcomes. In other words, the institution excels at spotting cancer recurrence risk and connecting patients to specialists, but it has almost no systematic mechanism for learning whether its survivorship care actually works from the patient&#8217;s point of view.</p>
<p>The electronic health record analysis painted a different and partly contradictory picture. Across the 438 patients, who had a mean age of 64.5 years and were mostly male, White, and non-Hispanic, the researchers documented 4,233 encounters in the first year after diagnosis. Head and neck oncology care, meaning visits with surgeons, radiation oncologists, and medical oncologists, dominated with 76.5 percent of all encounters. The remaining quarter of care was concentrated almost entirely in two categories: specialist services, which accounted for 14.3 percent of encounters, and rehabilitation, which accounted for 6.0 percent. At the patient level, 38.8 percent had at least one specialist visit and 31.5 percent had at least one rehabilitation encounter. Strikingly, several services that are considered central to comprehensive head and neck cancer survivorship, including nutrition support, were completely undocumented in the record.</p>
<p>How can clinicians perceive a broad network of survivorship services while the data show only a narrow slice? The authors offer a compelling technical explanation. Electronic health records are built primarily for clinical care and billing, not for measuring the full spectrum of supportive services. A lymphedema assessment may be performed during a rehabilitation visit without ever appearing as a separate structured service category. Nutrition support may be delivered through patient education materials on websites or printed literature in waiting rooms, activities that generate no billable encounter and therefore leave no trace in the structured data. Clinicians, whose daily work involves actually delivering this care, may have a more complete picture of what patients receive than any database can capture. The discrepancy is not necessarily evidence of missing care; it is evidence that the measurement infrastructure is blind to much of what happens.</p>
<p>One of the most anticipated findings concerned geography. Prior research has suggested that rural patients face barriers to head and neck cancer care, since specialized surgery is concentrated in high-volume cancer centers that may require long travel. Yet in this study, residence in rural, suburban, or urban areas showed no association with the number of documented encounters. The cohort was well distributed geographically, with 36.5 percent urban, 28.8 percent suburban, and 33.8 percent rural residents, and a quarter living in areas with poverty rates of 20 percent or higher. The authors note that some studies have described a paradox of travel time, in which patients who travel farther to reach high-volume centers actually experience better outcomes, possibly because those who make the journey are a selected group. Disentangling whether encounter counts truly capture access, or whether geocoded travel distance tells a different story, remains an open question for future research.</p>
<p>What did predict how much care patients received? Comorbidity burden was the most consistent correlate. Each additional Charlson comorbidity was associated with a 13.0 percent higher rate of total encounters, a 9.1 percent higher rate of head and neck oncology visits, and a striking 46.4 percent higher rate of specialist encounters. Patients with more chronic disease generate more follow-up, which is clinically sensible but also hints that sicker survivors absorb a disproportionate share of limited survivorship resources. Rehabilitation encounters were the exception, showing no association with comorbidity count, and patients with laryngeal cancer trended toward fewer rehabilitation visits than those with oropharyngeal tumors. The authors caution that these observational findings should not be read causally, but they underscore how clinical complexity drives utilization patterns across the survivorship period.</p>
<p>The study&#8217;s limitations are worth noting. It was conducted at a single academic health system with an unusually integrated rehabilitation service, which may have inflated rehabilitation counts and limits generalizability. Care received outside the system was invisible, the quality of documented encounters could not be assessed, and structured coding may undercount services that were actually delivered. Still, the strengths are substantial: pairing provider perceptions with record-based utilization data offers a rare dual view of how survivorship standards are perceived, documented, and measured in a real system serving rural and urban populations alike. The authors point toward promising solutions, including natural language processing and large language model-assisted review of unstructured notes to detect care that structured fields miss, automated referral pathways, and digital symptom monitoring that could extend survivorship services into patients&#8217; homes regardless of ZIP code.</p>
<p>The broader message resonates far beyond Southeast Texas. Head and neck cancer survivors face a formidable array of late effects, from dry mouth, swallowing difficulty, and pain to fatigue, lymphedema, dental problems, sleep disturbance, and emotional distress, and roughly a third experience emergency department visits or hospitalizations in their first year after diagnosis. The new national standards offer a blueprint, but this study shows that turning a blueprint into measurable, equitable care requires more than good intentions from clinicians. It requires policies that mandate documentation, assessments that capture patient-reported outcomes, and informatics infrastructure designed to see the full breadth of survivorship care rather than only its billable fragments. For the more than half a million Americans living after head and neck cancer, closing that visibility gap may be one of the most consequential steps the cancer care system can take.</p>
<p><strong>Subject of Research:</strong> Alignment of head and neck cancer survivorship care with national survivorship standards across rural and urban patient populations</p>
<p><strong>Article Title:</strong> Cancer survivorship care among head and neck cancer patients living in rural and urban locations</p>
<p><strong>Article References:</strong> Van Cleave, J. H., Fortes, I. S. H., Rodriguez, J. A., Araya, A., Karni, R. J., Gutiérrez, C., Fenton, S. H., Schulman-Green, D., Myneni, S., Gong, Y., Jain, K. S., &amp; Egleston, B. L. (2026). Cancer survivorship care among head and neck cancer patients living in rural and urban locations. <em>Journal of Cancer Survivorship</em>. <a href="https://doi.org/10.1007/s11764-026-02129-8" rel="noopener noreferrer">https://doi.org/10.1007/s11764-026-02129-8</a></p>
<p><strong>Image Credits:</strong> AI Generated</p>
<p><strong>DOI:</strong> <a href="https://doi.org/10.1007/s11764-026-02129-8" rel="noopener noreferrer">10.1007/s11764-026-02129-8</a></p>
<p><strong>Keywords:</strong> head and neck cancer, cancer survivorship, survivorship care standards, electronic health records, rural health, health services research, rehabilitation, comorbidity, health disparities, patient-reported outcomes, cancer care delivery, informatics</p>
]]></content:encoded>
					
		
		
		<post-id xmlns="com-wordpress:feed-additions:1">224602</post-id>	</item>
		<item>
		<title>Money Worries Are the Blind Spot in Cancer Survivorship Care, Study Finds</title>
		<link>https://scienmag.com/money-worries-are-the-blind-spot-in-cancer-survivorship-care-study-finds/</link>
		
		<dc:creator><![CDATA[Nathaniel Bowman]]></dc:creator>
		<pubDate>Sun, 20 Sep 2026 23:34:24 +0000</pubDate>
				<category><![CDATA[Cancer]]></category>
		<category><![CDATA[assessing financial concerns in cancer patients]]></category>
		<category><![CDATA[cancer survivorship]]></category>
		<category><![CDATA[cancer survivorship care]]></category>
		<category><![CDATA[financial burden of cancer treatment]]></category>
		<category><![CDATA[financial screening]]></category>
		<category><![CDATA[financial toxicity]]></category>
		<category><![CDATA[financial toxicity in cancer treatment]]></category>
		<category><![CDATA[gaps in cancer survivorship standards]]></category>
		<category><![CDATA[health insurance concerns]]></category>
		<category><![CDATA[healthcare disparities in cancer survivorship]]></category>
		<category><![CDATA[impact of healthcare affordability on cancer survivors]]></category>
		<category><![CDATA[importance of holistic cancer care]]></category>
		<category><![CDATA[long-term physical and emotional health in cancer survivors]]></category>
		<category><![CDATA[mixed-methods research]]></category>
		<category><![CDATA[National Standards for Cancer Survivorship Care]]></category>
		<category><![CDATA[NCI Comprehensive Cancer Center]]></category>
		<category><![CDATA[oncology care delivery]]></category>
		<category><![CDATA[patient-reported outcomes]]></category>
		<category><![CDATA[quality improvement]]></category>
		<category><![CDATA[rising number of cancer survivors in the U.S.]]></category>
		<category><![CDATA[rural health disparities]]></category>
		<category><![CDATA[screening for financial distress in oncology]]></category>
		<category><![CDATA[survivorship care standards]]></category>
		<guid isPermaLink="false">https://scienmag.com/?p=203964</guid>

					<description><![CDATA[A new mixed-methods study finds that while cancer care teams reliably screen survivors for physical and emotional concerns, fewer than 30 percent of survivors report regular assessment of financial and insurance issues, exposing a critical gap in implementing the national survivorship care standards.]]></description>
										<content:encoded><![CDATA[<p>For the growing population of Americans living beyond a cancer diagnosis, the medical system has made remarkable progress at checking for pain, depression, and lingering physical symptoms. What it has largely failed to do, according to a new study, is ask patients a far more basic question: can you afford this care? Research published in the Journal of Cancer Survivorship reports that fewer than 30 percent of cancer survivors at a major comprehensive cancer center said their treatment teams regularly assessed their financial or health insurance concerns, even as more than 70 percent reported routine screening for physical and emotional problems. The gap, the authors argue, represents a critical failure point in the rollout of the 2024 National Standards for Cancer Survivorship Care, the first national roadmap defining what quality survivorship care should look like across United States health systems.</p>
<p>The numbers behind that roadmap are staggering. In 2025, an estimated 18.6 million people in the United States were living as cancer survivors, a figure projected to climb to 26 million by 2040. Roughly two million new diagnoses are made annually, and with five-year survival rates now at 70 percent and ten-year survival at 48 percent, caring for the long-term physical, psychological, social, and functional consequences of cancer has become a central challenge of modern oncology. Yet implementation of evidence-based survivorship care has lagged. Nationwide surveys show that only about 31 percent of Commission on Cancer accredited facilities and 41 percent of NCI Community Oncology Research Program institutions operate dedicated survivorship clinics, leaving most care to already stretched treatment teams with limited survivorship specialization.</p>
<p>The new study, led by Marguerite A. Webster and colleagues at the University of Kentucky Markey Cancer Center, is among the first to measure how clinical practice aligns with the national standards directly from the survivor&#8217;s perspective. The researchers conducted a convergent mixed-methods investigation at a university-based NCI Designated Comprehensive Cancer Center in the southeastern United States, combining standardized surveys with semi-structured interviews. Between February and August 2025, 150 survivors recruited from four outpatient solid tumor clinics completed roughly 30-minute surveys. Participants ranged in age from 22 to 83, with a mean of about 59 years, and were purposively sampled to ensure balanced representation across treatment phase, disease stage, and rural versus nonrural residence. A subset of 17 survivors then completed in-depth interviews averaging 24 minutes, which were analyzed using directed content analysis anchored to the national standards.</p>
<p>The survey instrument, modeled on the Patient-Centered Survivorship Care Index, asked participants how often their care team asked about six domains of concern: physical, emotional, practical, social, financial, and insurance. Survivors were counted as assessed only if they reported being asked at most or every visit, reflecting the standards&#8217; expectation that survivors be evaluated at multiple points across their care. The results revealed a striking hierarchy of attention. Physical concerns topped the list, with 91 percent of participants reporting regular assessment, followed by tobacco use at 87 percent, physical activity at 79 percent, emotional concerns at 79 percent, and diet at 74 percent. Financial hardship fell to 29 percent and insurance concerns to 22 percent, making money-related matters the least screened domains by a wide margin.</p>
<p>Encouragingly, once a concern was voiced, the care system largely delivered. Among survivors who reported experiencing and communicating a concern, management through advice, help, or referral was nearly universal: 97 percent for physical concerns, 96 percent for emotional concerns, and a full 100 percent for financial, insurance, and social concerns. Lifestyle behaviors fared somewhat less well, with diet advice reaching 94 percent of those asked but tobacco counseling only 70 percent. The pattern suggests the fundamental machinery of referral and support exists within the cancer center; the bottleneck is not the response but the question. Concerns that survivors never mention—because no one asks—are concerns the system never addresses.</p>
<p>That bottleneck appears to fall unevenly on already vulnerable populations. Rural survivors in the sample reported significantly lower rates of assessment for physical concerns (89 percent versus 97 percent) and financial concerns (23 percent versus 38 percent) compared with nonrural peers, and were less likely to say they were listened to about practical and social matters. They were also less likely to be asked about diet, physical activity, and alcohol use. The authors speculate that care teams may assume rural patients prefer not to discuss personal financial matters, an unspoken cultural assumption that risks leaving financial toxicity undetected where it may be most severe. By contrast, treatment phase and disease stage made little difference in screening practices, with one notable exception: 96 percent of actively treated survivors received help with practical concerns such as transportation, compared with none of the post-treatment survivors.</p>
<p>The interviews added texture to these statistics. Survivors described assessments that were often generic—repeated questions like &#8220;Is there anything you need?&#8221;—rather than structured, focused screening beyond routine check-ins about pain and depression. Symptom and wellbeing questionnaires were frequently administered through the patient portal or by nursing staff before appointments, with inconsistent follow-up by physicians. Many participants were unaware that the cancer center offered dedicated survivorship visits at all, and few recalled being offered a meeting with a survivorship nurse after finishing treatment. When problems were identified, however, survivors praised the care teams&#8217; responsiveness, describing multidisciplinary referrals to social workers, nutritionists, genetic counselors, and physical therapists, and emphasizing the value of approachable providers who practiced genuine shared decision-making. As one participant put it, &#8220;I&#8217;m not a number. They actually care.&#8221;</p>
<p>The financial blind spot carries real consequences. Financial toxicity—the hardship caused by the cost of medical care—affects between 28 and 48 percent of cancer survivors and is associated with active treatment, late-stage diagnosis, and longer time since diagnosis. It is tightly intertwined with insurance problems, employment disruption, and mounting debt, and it can delay or derail treatment in ways that directly worsen outcomes. Paradoxically, national studies of NCI Community Oncology Research Program and NCCN sites report that 72 to 78 percent of institutions claim to have financial screening processes in place, yet other research shows 58 percent of breast cancer survivors were never asked about financial stressors by their care team. Policy and process, in other words, do not guarantee reach. The authors argue that even where screening mandates exist, implementation may fail at the individual patient level—particularly for rural and other underserved survivors.</p>
<p>The solution, the researchers contend, cannot rest on patients&#8217; willingness to advocate for themselves. Social determinants such as insurance coverage, travel distance, and financial hardship can disrupt care delivery and degrade cancer outcomes, so the onus should fall on the health system. They recommend proactive, standardized assessment of financial and insurance concerns at multiple points in care, expanded access to financial navigation, empathetic provider communication about money, and periodic audits to verify that screening tools are actually working. Cancer centers should also operationalize the national standards into clearly defined steps and benchmarks, since the standards currently describe important processes but offer little guidance for measurement. Quality improvement frameworks such as Plan-Do-Study-Act cycles could help institutions implement the standards systematically, with special focus on financial matters.</p>
<p>The study has limitations worth noting. It measured only a subset of the standards&#8217; process indicators, relied on self-reported data vulnerable to recall and social desirability bias, used face-valid survey items rather than psychometrically validated instruments, and drew its sample from a single cancer center, limiting generalizability. The interview subset of 17 participants was small, and qualitative findings should be read as an expansion of survey results rather than a definitive population portrait. Still, as one of the first direct assessments of the new national standards from survivors&#8217; own experiences, the work delivers an unambiguous message: the health system has learned to ask about the body and the mind, but until it routinely asks about the wallet, survivorship care will remain incomplete for millions of Americans facing cancer&#8217;s long financial shadow.</p>
<p><strong>Subject of Research:</strong> Assessment of financial and insurance concerns in cancer survivorship care under the 2024 National Standards for Cancer Survivorship Care</p>
<p><strong>Article Title:</strong> Financial concerns: a critical gap in survivors’ experience of the implementation of the national standards for cancer survivorship care</p>
<p><strong>Article References:</strong> Financial concerns: a critical gap in survivors’ experience of the implementation of the national standards for cancer survivorship care. (n.d.). <a href="https://doi.org/10.1007/s11764-026-02126-x" rel="noopener noreferrer">https://doi.org/10.1007/s11764-026-02126-x</a></p>
<p><strong>Image Credits:</strong> AI Generated</p>
<p><strong>DOI:</strong> <a href="https://doi.org/10.1007/s11764-026-02126-x" rel="noopener noreferrer">10.1007/s11764-026-02126-x</a></p>
<p><strong>Keywords:</strong> cancer survivorship, financial toxicity, National Standards for Cancer Survivorship Care, health insurance concerns, rural health disparities, mixed-methods research, survivorship care standards, financial screening, quality improvement, oncology care delivery, NCI Comprehensive Cancer Center, patient-reported outcomes</p>
]]></content:encoded>
					
		
		
		<post-id xmlns="com-wordpress:feed-additions:1">203964</post-id>	</item>
	</channel>
</rss>
