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	<title>patient participation &#8211; Science</title>
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	<title>patient participation &#8211; Science</title>
	<link>https://scienmag.com</link>
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		<title>WeChat Coaching Helps Older Patients Stay Safe With Medications After Hospital Discharge</title>
		<link>https://scienmag.com/wechat-coaching-helps-older-patients-stay-safe-with-medications-after-hospital-discharge/</link>
		
		<dc:creator><![CDATA[Ophelia Keating]]></dc:creator>
		<pubDate>Wed, 30 Sep 2026 18:20:37 +0000</pubDate>
				<category><![CDATA[Medicine]]></category>
		<category><![CDATA[behavioral science-based medication safety interventions]]></category>
		<category><![CDATA[Chinese clinical trial on medication safety]]></category>
		<category><![CDATA[chronic disease]]></category>
		<category><![CDATA[chronic disease management in seniors]]></category>
		<category><![CDATA[geriatrics]]></category>
		<category><![CDATA[health literacy]]></category>
		<category><![CDATA[hospital discharge safety programs]]></category>
		<category><![CDATA[hospital to home transition]]></category>
		<category><![CDATA[medication adherence support via WeChat]]></category>
		<category><![CDATA[medication discrepancies]]></category>
		<category><![CDATA[medication safety]]></category>
		<category><![CDATA[motivational interviewing]]></category>
		<category><![CDATA[nursing research]]></category>
		<category><![CDATA[nursing research on elderly medication safety]]></category>
		<category><![CDATA[older adults]]></category>
		<category><![CDATA[patient participation]]></category>
		<category><![CDATA[patient participation in medication safety]]></category>
		<category><![CDATA[post-hospital discharge medication management]]></category>
		<category><![CDATA[Randomized Controlled Trial]]></category>
		<category><![CDATA[randomized controlled trial on medication safety]]></category>
		<category><![CDATA[reducing medication discrepancies in elderly patients]]></category>
		<category><![CDATA[teach-back education]]></category>
		<category><![CDATA[technology-assisted medication management for seniors]]></category>
		<category><![CDATA[WeChat medication safety coaching for older adults]]></category>
		<guid isPermaLink="false">https://scienmag.com/?p=217990</guid>

					<description><![CDATA[A randomized controlled trial in Fuzhou, China found that a structured Participation for Medication Safety program combining teach-back education and weekly WeChat-based motivational interviewing cut medication discrepancies among older patients after hospital discharge by nearly 90 percent.]]></description>
										<content:encoded><![CDATA[<p>For millions of older adults living with chronic disease, the moment of leaving the hospital is one of the most dangerous in modern medicine. Prescriptions are rewritten, doses are adjusted, and instructions that seemed clear at the bedside often dissolve into confusion at the kitchen table. A new randomized controlled trial from China suggests that a carefully structured program—built around teaching patients to actively participate in their own medication safety—can substantially reduce those risks, cutting the odds of dangerous medication discrepancies by nearly ninety percent in the three months after discharge.</p>
<p>The study, conducted by a team of nursing researchers at Fujian Medical University and published in BMC Geriatrics, recruited 111 older inpatients with chronic diseases who were being discharged from two tertiary hospitals in Fuzhou in August 2024. Participants were randomly assigned in equal measure to either an intervention group of 56 patients or a control group of 55 who received routine care. The trial, registered with the Chinese Clinical Trial Registry in April 2024, was designed to test a program the researchers call Participation for Medication Safety, or PFMS—an intervention grounded in a well-established framework of behavioral science rather than in simple information delivery.</p>
<p>That behavioral foundation matters. The program was constructed using the Behavior Change Wheel and its COM-B model, which holds that any behavior—in this case, an older patient&#8217;s active engagement in checking and managing medications—requires three ingredients: capability, opportunity, and motivation. Rather than assuming that patients will follow instructions simply because they received them, the PFMS program deliberately builds each of these components. Specific behavior change techniques were mapped onto the transition period, the window in which the evidence base shows most medication errors are born.</p>
<p>The intervention itself unfolded in two phases. Before discharge, each patient in the intervention group received two one-on-one, face-to-face sessions lasting thirty to sixty minutes each. The first focused on a systematic review of medication discrepancies—comparing what the patient had actually been taking at home against newly prescribed regimens to surface duplications, omissions, and dose changes. The second used teach-back education, a technique in which patients must explain their medication plan in their own words until they can do so accurately, ensuring comprehension rather than mere exposure to information.</p>
<p>After discharge, the support continued remotely. Over the following six weeks, patients received six weekly sessions of motivational interviewing delivered by video call through WeChat, each lasting ten to twenty minutes. Motivational interviewing is a conversational technique that draws out a person&#8217;s own reasons for change rather than lecturing them, and its use here reflects a deliberate choice to treat older patients as partners in safety rather than passive recipients of care. The low-tech delivery—a video call on an app already ubiquitous in China—also means the model could be scaled without expensive infrastructure.</p>
<p>The results, analyzed using Generalized Linear Mixed Models under the intention-to-treat principle, were striking. At three months after discharge, patients in the intervention group scored significantly higher on measures of participation in medication safety, with a beta coefficient of 15.461 and a confidence interval running from 10.631 to 20.292, well clear of zero. Health literacy also rose significantly, with a beta of 7.053. Most dramatically, the odds of experiencing a medication discrepancy were reduced by 87 percent, with an odds ratio of 0.128—meaning patients who went through the program were roughly one-eighth as likely to have a mismatch between what was prescribed and what they actually took.</p>
<p>Not every effect endured. The program produced statistically significant group-level improvements in self-efficacy and in perceived healthcare provider support, but between-group differences on those two outcomes appeared only at the six-week mark, at the end of the intervention, and had faded by three months. The authors are candid about this: the motivational engine that the weekly calls provided seems to have sustained confidence and perceived support while the contact lasted, but without reinforcement those psychological gains eroded. The core behavioral outcomes—participation, health literacy, and above all the absence of medication discrepancies—nevertheless held firm at three months, suggesting that the skills patients learned outlasted the sessions themselves.</p>
<p>Why does this matter so much? Medication discrepancies at care transitions are among the most common and preventable causes of harm in older adults. When a patient leaves the hospital with a changed regimen but continues taking old pills from a home cabinet, or misunderstands a new dose, the consequences range from undertreated illness to emergency readmission. Older adults with multiple chronic conditions are especially vulnerable, often juggling numerous medications prescribed by different specialists. The trial&#8217;s findings point to a deceptively simple insight: the most effective safeguard is not another pharmacist checking another chart, but the patient—properly equipped and motivated—checking for themselves.</p>
<p>The study has limits worth noting. It was conducted in two tertiary hospitals in a single Chinese city, and 92 of the 111 participants completed follow-up, leaving some room for attrition effects. The intervention required trained staff to deliver face-to-face sessions and weekly video calls, which carries resource implications for health systems considering adoption. And while the three-month follow-up demonstrates durability for the primary outcomes, longer-term persistence remains untested. Still, the effect size on medication discrepancies is large enough that even partial replication in other settings would represent a meaningful advance for geriatric care.</p>
<p>The broader lesson reaches beyond geriatrics. The trial demonstrates that behavioral science frameworks—capability, opportunity, motivation—can be operationalized into a practical, low-cost clinical program with measurable safety benefits, and that patient participation should be treated as a clinical intervention in its own right rather than a soft aspiration. As health systems worldwide grapple with aging populations and revolving-door readmissions, the Fuzhou experiment offers a template: teach patients to question, verify, and own their medication lists before they leave the hospital, keep the conversation going for six weeks afterward, and let the patient become the final, most reliable checkpoint in the medication safety chain.</p>
<p><strong>Subject of Research:</strong> A randomized controlled trial of a patient participation program to improve medication safety during the hospital-to-home transition for older adults with chronic diseases.</p>
<p><strong>Article Title:</strong> Enhancing older adults’ participation in medication safety during the hospital-to-home transition: a randomized controlled trial</p>
<p><strong>Article References:</strong> Xu, W., Lai, H., Ren, Y., Yang, Y., Zhang, S., Lin, X., Chen, S., Liu, Y., He, H., Huang, S., &amp; Lin, T. (2026). Enhancing older adults’ participation in medication safety during the hospital-to-home transition: a randomized controlled trial. <em>BMC Geriatrics</em>. <a href="https://doi.org/10.1186/s12877-026-08306-9" rel="noopener noreferrer">https://doi.org/10.1186/s12877-026-08306-9</a></p>
<p><strong>Image Credits:</strong> AI Generated</p>
<p><strong>DOI:</strong> <a href="https://doi.org/10.1186/s12877-026-08306-9" rel="noopener noreferrer">10.1186/s12877-026-08306-9</a></p>
<p><strong>Keywords:</strong> medication safety, older adults, hospital-to-home transition, randomized controlled trial, patient participation, health literacy, motivational interviewing, teach-back education, medication discrepancies, chronic disease, geriatrics, nursing research</p>
]]></content:encoded>
					
		
		
		<post-id xmlns="com-wordpress:feed-additions:1">217990</post-id>	</item>
		<item>
		<title>Bedside Handover Alone Doesn&#8217;t Give ICU Patients a Real Voice, Study Finds</title>
		<link>https://scienmag.com/bedside-handover-alone-doesnt-give-icu-patients-a-real-voice-study-finds/</link>
		
		<dc:creator><![CDATA[Ophelia Keating]]></dc:creator>
		<pubDate>Thu, 24 Sep 2026 23:13:02 +0000</pubDate>
				<category><![CDATA[Medicine]]></category>
		<category><![CDATA[adverse events in hospitalized patients]]></category>
		<category><![CDATA[bedside handover]]></category>
		<category><![CDATA[Bedside handover in ICU]]></category>
		<category><![CDATA[Brazil]]></category>
		<category><![CDATA[communication]]></category>
		<category><![CDATA[communication barriers in critical care]]></category>
		<category><![CDATA[coronary care]]></category>
		<category><![CDATA[global patient safety challenges]]></category>
		<category><![CDATA[impact of bedside handover on patient engagement]]></category>
		<category><![CDATA[intensive care]]></category>
		<category><![CDATA[nursing]]></category>
		<category><![CDATA[nursing handover]]></category>
		<category><![CDATA[nursing practices in intensive care]]></category>
		<category><![CDATA[participatory care in critical settings]]></category>
		<category><![CDATA[Patient Engagement]]></category>
		<category><![CDATA[patient participation]]></category>
		<category><![CDATA[patient participation in healthcare]]></category>
		<category><![CDATA[patient safety]]></category>
		<category><![CDATA[patient safety during bedside handover]]></category>
		<category><![CDATA[patient voice in medical handovers]]></category>
		<category><![CDATA[patient-centered care in ICUs]]></category>
		<category><![CDATA[patient-centred care]]></category>
		<category><![CDATA[qualitative research]]></category>
		<category><![CDATA[qualitative studies on healthcare communication]]></category>
		<guid isPermaLink="false">https://scienmag.com/?p=213047</guid>

					<description><![CDATA[A qualitative study in a Brazilian coronary intensive care unit shows that bedside nursing handover does not automatically translate into meaningful patient participation, with many patients not perceiving themselves as legitimate contributors to the process.]]></description>
										<content:encoded><![CDATA[<p>Every twelve hours, in a coronary intensive care unit in Rio de Janeiro, nurses gather at the bedsides of patients recovering from heart attacks and cardiac surgery to hand over responsibility for care to the incoming shift. The ritual is supposed to be one of the safest moments in modern medicine: a structured exchange of information designed to catch errors before they harm anyone. Yet a new qualitative study published in Nursing Open reveals a striking paradox. Even when handover happens right at the patient&#8217;s bedside, patients themselves often remain silent bystanders, unsure whether they are even allowed to speak. The research, conducted by a team of Brazilian nursing scientists, suggests that moving communication to the bedside is only the first step toward genuinely participatory care, and that the gap between physical presence and meaningful engagement may be far wider than the global patient safety community has assumed.</p>
<p>The stakes of this question are enormous. According to the World Health Organization, roughly ten percent of hospitalized patients in high-income countries experience adverse events during their care, a figure that climbs to twenty-five percent in low- and middle-income settings. The WHO estimates that unsafe care contributes to approximately 134 million incidents each year and around 2.6 million deaths worldwide. In response, the organization&#8217;s Global Patient Safety Action Plan 2021–2030 identified patient and family engagement as a central strategy for reducing avoidable harm. The theoretical foundation for this approach comes from a widely cited framework by Carman and colleagues, which describes engagement as a continuum ranging from simply receiving information to active partnership and shared decision-making. The new study set out to discover where critically ill cardiac patients and the nurses who care for them actually stand on that continuum.</p>
<p>The research team conducted an exploratory qualitative study in an eight-bed coronary intensive care unit at a public hospital in Rio de Janeiro, where nursing handover already takes place twice daily, at seven in the morning and seven in the evening, supported by a structured communication instrument. Between October 2023 and May 2024, a doctoral researcher conducted individual semi-structured interviews with 22 nursing professionals, comprising eight nurses and fourteen nursing technicians, and 16 hospitalized patients. Patients were eligible only if they had been in the unit for at least 48 hours and had experienced at least four handovers, and only if they were clinically stable, able to communicate, and free of cognitive impairment. Interviews were audio-recorded, transcribed verbatim in Portuguese, and analyzed using inductive thematic content analysis, producing 450 thematic recording units that were distilled into 15 meaning units and ultimately four themes. Data collection ended when empirical saturation was reached, meaning additional interviews no longer generated new concepts.</p>
<p>The first major finding was that the nursing professionals genuinely valued bedside handover. They described how seeing the patient directly allowed them to check devices, verify clinical information, and catch risks that might otherwise slip through the cracks. One nurse explained that the model had helped reduce safety incidents precisely because the patient could be visualized, citing the example of a patient exposed to the risk of falling from bed. The structured script functioned as a memory aid, ensuring that all important points were covered. Crucially, several professionals acknowledged that patients themselves could serve as an additional safeguard. One nurse noted that patients often know everything happening to them and had sometimes corrected or added information. A nursing technician described how simply asking patients about allergies could prevent adverse events, information that might never surface through documentation alone.</p>
<p>Yet the professionals were deeply ambivalent about inviting patients into the conversation. The second theme, drawing on 135 recording units, exposed a web of barriers that went well beyond logistics. Communication was the most prominent concern: acronyms, biomedical jargon, and unexplained clinical expressions could confuse patients or, worse, terrify them. One nurse recounted a patient who was shocked because he believed he was HIV positive after mishearing an abbreviation. Professionals also questioned whether all information should be shared at the bedside, worrying that details about bleeding, severe prognoses, or uncertain medical decisions could cause emotional distress. Organizational constraints compounded the problem: handover must remain dynamic and efficient, the unit&#8217;s open layout with beds separated only by screens offered little privacy, and some patients suffered from confusion or confinement syndrome that made participation difficult or impossible.</p>
<p>The third theme revealed what professionals believed would be needed to make participation work. Rather than rejecting the idea outright, they called for a structured model with clear criteria about what information should be communicated at the bedside and what should be discussed separately among professionals. Training emerged as a non-negotiable prerequisite: staff wanted to understand the purpose of patient participation, how to invite patients, how to use plain language, and how to avoid psychological repercussions. Some suggested informational videos to support adherence. Perhaps most tellingly, professionals recognized that patients would need explicit encouragement to participate, proposing that nurses end each handover by asking whether the patient had questions or wanted to add anything. Participation, they concluded, is not spontaneous; it depends on an opening deliberately created by the nursing team.</p>
<p>The fourth and most striking theme came from the patients themselves, who demonstrated only limited familiarity with the handover happening at their own bedsides. Most understood it as a conversation among professionals to update the incoming team, not as a moment in which they could take part. Their willingness to engage varied enormously. Some feared emotional distress or embarrassment, with one patient saying he would feel ashamed to listen, and another noting that hearing difficult news could be devastating for patients whose treatment had not gone well. Others were interested in listening, asking questions, or correcting overlooked details. But the most powerful finding was that several patients did not perceive themselves as legitimate participants at all. One declared that participation was simply not his role because he was just the patient, while another said the meeting belonged to the professionals, not to him. Many said they would participate only if explicitly invited.</p>
<p>The study&#8217;s central conceptual contribution lies in its sharp distinction between bedside handover and participatory handover. Bedside handover changes where communication occurs; participatory handover requires changes in how communication occurs, by intentionally incorporating patients as active contributors to the exchange of information. Because this study was conducted in a setting where bedside handover was already embedded in routine practice, the findings shift the debate from whether the practice should be adopted to how it can evolve. Physical presence, the authors argue, should never be interpreted as evidence of meaningful engagement. Interpreted through Carman&#8217;s engagement framework, patient participation in this unit remained largely at the initial stages of the continuum: patients were present and occasionally informed, but rarely encouraged to contribute or share responsibility for communication.</p>
<p>The findings also carry important implications for the Brazilian healthcare context, where patient engagement has only recently become an explicit priority in national safety policies and where hierarchical communication traditions and biomedical culture remain influential. The authors caution that professionals&#8217; concerns should not be read as resistance to innovation but as an attempt to balance the benefits of participation with ethical and clinical responsibilities, including confidentiality and emotional protection. Trust emerged as a double-edged factor: confidence in professionals made patients feel safe, but sometimes reduced their sense that their own contributions could improve care. The authors argue that trust and participation should be understood as complementary rather than competing values.</p>
<p>Ultimately, the study concludes that participatory handover should not be imposed as a standardized requirement but offered as a flexible communication strategy tailored to each patient&#8217;s preferences, health literacy, communication abilities, and clinical condition, ensuring that every patient has the opportunity, but never the obligation, to take part. Implementing this vision, the researchers emphasize, is a system-level intervention requiring institutional guidance, staff training, leadership commitment, and organizational cultures that value dialogue and shared responsibility, rather than leaving the decision to individual discretion. The study&#8217;s limitations, including its single-unit setting and the absence of family perspectives, mean the findings are context-specific, but their message resonates globally: the patient lying at the center of the bedside handover will only find a voice when the healthcare system deliberately makes room for one.</p>
<p><strong>Subject of Research:</strong> Patient participation in nursing handover in a coronary intensive care unit</p>
<p><strong>Article Title:</strong> Patient Participation in Nursing Handover in a Coronary Intensive Care Unit: A Qualitative Study</p>
<p><strong>Article References:</strong> Santos, G. R. D. S. D., Duarte, S. D. C. M., Campos, J. F., &amp; da Silva, R. C. (2026). Patient Participation in Nursing Handover in a Coronary Intensive Care Unit: A Qualitative Study. <em>Nursing Open, 13</em>(9), Article e70802. <a href="https://doi.org/10.1002/nop2.70802" rel="noopener noreferrer">https://doi.org/10.1002/nop2.70802</a></p>
<p><strong>Image Credits:</strong> AI Generated</p>
<p><strong>DOI:</strong> <a href="https://doi.org/10.1002/nop2.70802" rel="noopener noreferrer">10.1002/nop2.70802</a></p>
<p><strong>Keywords:</strong> patient participation, nursing handover, bedside handover, intensive care, patient safety, patient-centred care, qualitative research, coronary care, communication, Brazil, nursing, patient engagement</p>
]]></content:encoded>
					
		
		
		<post-id xmlns="com-wordpress:feed-additions:1">213047</post-id>	</item>
		<item>
		<title>How Brazil Is Teaching Citizens to Shape National Health Decisions</title>
		<link>https://scienmag.com/how-brazil-is-teaching-citizens-to-shape-national-health-decisions/</link>
		
		<dc:creator><![CDATA[Courtney Benton]]></dc:creator>
		<pubDate>Thu, 24 Sep 2026 01:49:29 +0000</pubDate>
				<category><![CDATA[Medicine]]></category>
		<category><![CDATA[Brazil]]></category>
		<category><![CDATA[Brazil health policy participation]]></category>
		<category><![CDATA[Brazil SUS health system reform]]></category>
		<category><![CDATA[capacity building]]></category>
		<category><![CDATA[Conitec]]></category>
		<category><![CDATA[empirical studies on health citizen involvement]]></category>
		<category><![CDATA[health decision transparency initiatives]]></category>
		<category><![CDATA[health literacy]]></category>
		<category><![CDATA[health literacy and patient empowerment]]></category>
		<category><![CDATA[health policy]]></category>
		<category><![CDATA[health technology assessment]]></category>
		<category><![CDATA[improving public understanding of health technology evaluation]]></category>
		<category><![CDATA[inclusive public health consultations]]></category>
		<category><![CDATA[knowledge translation]]></category>
		<category><![CDATA[learning health systems]]></category>
		<category><![CDATA[low-and-middle-income countries]]></category>
		<category><![CDATA[overcoming language barriers in health decisions]]></category>
		<category><![CDATA[participatory health governance]]></category>
		<category><![CDATA[patient education in health policymaking]]></category>
		<category><![CDATA[patient participation]]></category>
		<category><![CDATA[Public engagement]]></category>
		<category><![CDATA[public engagement in health decision-making]]></category>
		<category><![CDATA[transparent health technology assessment]]></category>
		<category><![CDATA[virtual learning environment]]></category>
		<guid isPermaLink="false">https://scienmag.com/?p=212038</guid>

					<description><![CDATA[A Brazilian research team built and tested a free, gamified knowledge translation platform that measurably improved public understanding of health technology assessment, offering a replicable model for strengthening citizen participation in national health policy decisions.]]></description>
										<content:encoded><![CDATA[<p>When Brazil&#8217;s public health system decides whether a new medicine, device, or procedure should be offered to millions of citizens, the decision passes through a national committee whose technical deliberations are, in principle, open to everyone. In practice, however, the process has long been closed off to the very people it affects, not by design but by language. The documents are dense with statistical jargon, the consultations assume a baseline of health literacy that much of the population does not have, and the educational resources that might bridge the gap are scarce. A research team at the National Institute of Cardiology in Rio de Janeiro set out to test whether that gap could be closed deliberately, with the same rigor that health agencies apply to the technologies they evaluate. Their answer, published in Health Research Policy and Systems, is a project called Participa SUS-ATS, and its results offer a rare empirical look at what it actually takes to make public participation in health policy more than a formality.</p>
<p>The target of the intervention was Conitec, Brazil&#8217;s National Committee for Health Technology Incorporation, the body that advises on which technologies enter the unified public health system known as SUS. Conitec&#8217;s public consultations are a formal channel through which patients and citizens can voice their perspectives before reimbursement and coverage decisions are made. International bodies, including the International Network of Agencies for Health Technology Assessment, treat such participation as essential to legitimate, equitable, patient-centered policy. Yet the researchers found that meaningful engagement was constrained by three intertwined barriers: low health literacy, reliance on technical language in consultation materials, and a shortage of accessible educational content that would explain what health technology assessment, or HTA, actually is. The team framed these barriers as a structural weakness, because a learning health system, one that continuously improves by cycling evidence into practice, requires an informed public as a core enabling condition rather than an optional courtesy.</p>
<p>To address the problem, the researchers turned to knowledge translation, the discipline concerned with moving evidence from those who produce it to those who need to use it. They organized their project around the knowledge-to-action framework, a widely used model that treats implementation as a structured process rather than a single act of communication. The framework guided the work through seven phases between 2022 and 2025, beginning with the identification of priority topics and ending with the deployment and evaluation of the finished products. Crucially, the team did not decide on its own what the public needed to learn. Their first substantive step was a needs assessment survey of patient and civil society representatives, the people with the most direct stake in HTA decisions and the clearest sense of what their communities find opaque.</p>
<p>That survey, completed by sixteen participants, generated five thematic areas that became the backbone of the curriculum. From these, the team built ten educational video modules, each adapted from technical HTA content into plain language. The adaptation process was deliberately conservative in its epistemics: content was developed by researchers, reviewed internally by HTA specialists, and then subjected to a structured pilot evaluation with a prespecified acceptability threshold of 70 percent across five domains, including clarity, relevance, and usefulness. Setting a numeric threshold in advance matters, because it converted what is often a vague aspiration, making content comprehensible, into a testable criterion. The pilot collected 430 responses, and the acceptance rates across the five domains ranged from 75 to 97 percent, clearing the bar in every case.</p>
<p>The most scientifically interesting part of the study is what happened next. User feedback did not simply confirm the content; it reshaped it. Respondents&#8217; comments directly triggered revisions, including the addition of Brazilian Sign Language interpretation, the creation of a glossary, and adjustments to the format of the materials. In other words, the intervention was built on a feedback loop in which the intended audience functioned as a source of validation and improvement rather than a passive recipient. This iterative design mirrors the logic of the learning health systems the project is meant to support: the educational platform itself learned from its users between iterations. The authors present this cycle of development, evaluation, and revision as the operational core of their knowledge translation approach, distinguishing it from one-off awareness campaigns that produce content once and hope it lands.</p>
<p>The delivery infrastructure consisted of two complementary channels. The first was a free, gamified virtual learning environment hosting the animated videos and interactive activities, an architecture chosen to lower the motivational cost of learning about an unfamiliar technical field. The second was a multichannel digital outreach strategy spanning social media platforms. The virtual learning environment recorded 4,355 accesses over the study period, with module completion rates ranging from 11.1 to 42.9 percent. Those completion figures are candidly reported and fall well short of universal engagement, a reminder that access to an educational resource is not the same as sustained use of it. Even so, several thousand citizens engaged with material that previously existed in no public form at all, and every piece of content remained freely accessible after the project&#8217;s funding ended, extending its useful life beyond the grant period.</p>
<p>The social media results, by contrast, show how sharply audience growth can respond to investment. The project&#8217;s Instagram account grew by 1,200 percent, from 576 to 7,514 followers, following a paid promotional campaign, with individual reels reaching as many as 47,000 views. LinkedIn accumulated 1,778 followers, and the project&#8217;s YouTube channel drew more than 5,000 views. The contrast between organic and paid reach is itself a finding with policy implications: in competitive digital ecosystems, technically valuable public-interest content does not automatically find its audience. For health agencies and research institutes operating in low- and middle-income countries, the lesson is that dissemination budgets are not decorative extras but structural components of participation infrastructure. A consultation process can only be as inclusive as the number of people who know it exists and understand what is being asked of them.</p>
<p>The study was conducted under Brazilian regulatory standards for human subjects research, approved by the Research Ethics Committee of the National Institute of Cardiology, with informed consent obtained from all participants, and it was funded by Brazil&#8217;s National Council for Scientific and Technological Development with no funder involvement in design, analysis, or publication decisions. These procedural details reinforce the study&#8217;s central claim, which is deliberately modest and replicable at once. The authors do not claim that the project transformed Conitec&#8217;s consultations or measured a downstream change in actual public submissions. What they demonstrate is feasibility and acceptability: that a knowledge-translation-informed intervention can be built, tested against prespecified criteria, refined through documented user feedback, and distributed at scale within a public institution&#8217;s constraints. Acceptance rates of 75 to 97 percent across 430 evaluators, combined with a twelvefold social media expansion, constitute measurable evidence on both counts.</p>
<p>The broader significance lies in the argument the data are marshaled to support. Patient and public participation in HTA is frequently endorsed in principle and underdelivered in practice, particularly in low- and middle-income countries where consultation infrastructure tends to be thin. The Participa SUS-ATS results suggest a concrete, transferable template: survey the affected community, adapt technical content into validated plain-language modules, deploy through a free gamified platform alongside targeted digital outreach, and build revision cycles from user feedback into the design from the start. Because the knowledge-to-action framework is generic and the materials are openly accessible, the model could be adapted by other national HTA agencies without starting from zero. If participation is indeed a structural enabling condition for learning health systems, then the unglamorous work of making a committee&#8217;s work comprehensible, one animated video and one glossary at a time, may turn out to be among the most consequential investments a health system can make. The Brazilian team has provided the first carefully documented demonstration that this work is feasible, acceptable to its audience, and capable of finding that audience when given the means.</p>
<p><strong>Subject of Research:</strong> Knowledge translation intervention to strengthen patient and public participation in health technology assessment in Brazil</p>
<p><strong>Article Title:</strong> Operationalizing knowledge translation to strengthen patient and public participation in health technology assessment: a multicomponent intervention to support enabling environments for learning health systems in Brazil</p>
<p><strong>Article References:</strong> Braga, A., Dias, Q., Spada, D., Evangelista, J. R., Correia, M., &amp; Santos, M. (2026). Operationalizing knowledge translation to strengthen patient and public participation in health technology assessment: a multicomponent intervention to support enabling environments for learning health systems in Brazil. <em>Health Research Policy and Systems</em>. <a href="https://doi.org/10.1186/s12961-026-01530-0" rel="noopener noreferrer">https://doi.org/10.1186/s12961-026-01530-0</a></p>
<p><strong>Image Credits:</strong> AI Generated</p>
<p><strong>DOI:</strong> <a href="https://doi.org/10.1186/s12961-026-01530-0" rel="noopener noreferrer">10.1186/s12961-026-01530-0</a></p>
<p><strong>Keywords:</strong> knowledge translation, health technology assessment, patient participation, public engagement, learning health systems, Brazil, Conitec, health literacy, capacity building, health policy, virtual learning environment, low- and middle-income countries</p>
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		<post-id xmlns="com-wordpress:feed-additions:1">212038</post-id>	</item>
		<item>
		<title>Why Ramps Alone Won&#8217;t Fix Disability Exclusion in African Health Care</title>
		<link>https://scienmag.com/why-ramps-alone-wont-fix-disability-exclusion-in-african-health-care/</link>
		
		<dc:creator><![CDATA[Courtney Benton]]></dc:creator>
		<pubDate>Mon, 21 Sep 2026 00:04:01 +0000</pubDate>
				<category><![CDATA[Science Education]]></category>
		<category><![CDATA[addressing layered and embedded health access barriers]]></category>
		<category><![CDATA[Assistive Technology]]></category>
		<category><![CDATA[barriers to health care for persons with disabilities in sub-Saharan Africa]]></category>
		<category><![CDATA[disability inclusion]]></category>
		<category><![CDATA[Disability inclusion in African primary health care]]></category>
		<category><![CDATA[disability-disaggregated data]]></category>
		<category><![CDATA[health equity]]></category>
		<category><![CDATA[health equity for persons with disabilities]]></category>
		<category><![CDATA[health financing]]></category>
		<category><![CDATA[health system governance and financing challenges]]></category>
		<category><![CDATA[health systems]]></category>
		<category><![CDATA[health workforce training]]></category>
		<category><![CDATA[impact of social and economic factors on health disparities]]></category>
		<category><![CDATA[importance of comprehensive disability policies]]></category>
		<category><![CDATA[limitations of physical accessibility improvements]]></category>
		<category><![CDATA[patient participation]]></category>
		<category><![CDATA[primary health care]]></category>
		<category><![CDATA[rehabilitation]]></category>
		<category><![CDATA[role of health system design in disability exclusion]]></category>
		<category><![CDATA[sub-Saharan Africa]]></category>
		<category><![CDATA[systemic barriers to disability access]]></category>
		<category><![CDATA[Universal Health Coverage]]></category>
		<category><![CDATA[universal health coverage and disability inclusion]]></category>
		<category><![CDATA[WHO global report on disability health inequities]]></category>
		<guid isPermaLink="false">https://scienmag.com/?p=204372</guid>

					<description><![CDATA[A new commentary argues that disability-inclusive primary health care in sub-Saharan Africa is a fundamental test of health equity and universal health coverage, demanding system-wide accountability rather than physical access fixes alone.]]></description>
										<content:encoded><![CDATA[<p>When policymakers in sub-Saharan Africa talk about making health care accessible for persons with disabilities, the conversation too often stops at the front door: build a ramp, widen a doorway, install accessible signage. A new commentary published in the International Journal for Equity in Health argues that this narrow framing is precisely why exclusion persists. Led by Mohamed Daud Mohamed of Somali National University, the analysis contends that disability inclusion in primary health care is not a peripheral concern or a specialist add-on, but a fundamental test of whether health systems in the region are genuinely advancing health equity and universal health coverage. According to the authors, the barriers facing persons with disabilities are layered, systemic, and embedded in the everyday design, financing, and governance of health services—meaning that physical access improvements, while necessary, address only a small fraction of the problem.</p>
<p>The commentary draws on the World Health Organization&#8217;s Global Report on Health Equity for Persons with Disabilities, which frames disability-related health inequities as avoidable differences produced by unfair social, economic, and health-system conditions rather than by impairment alone. The evidence it synthesizes is stark. Persons with disabilities experience higher mortality and morbidity, greater limitations in functioning, unmet health needs, poorer quality of care, stigma and discrimination, unaffordable services, inaccessible facilities, health information provided only in unusable formats, poor communication with providers, and weak referral systems. In sub-Saharan Africa, these disadvantages are intensified by chronically under-resourced primary health care systems, heavy reliance on out-of-pocket payments, limited and poorly equipped rehabilitation services, and fragile referral pathways, particularly in low-spending settings.</p>
<p>A central contribution of the analysis is its detailed mapping of how barriers accumulate along the entire care pathway, beginning long before a patient reaches a clinic. Evidence shows that difficulties in recognizing health needs and deciding to seek care are often compounded by limited health information, low health literacy, and dependence on caregivers for decision-making, especially among children and people with cognitive or sensory impairments. Once a person attempts to access services, direct and indirect financial obstacles pile up: consultation fees, diagnostic costs, medicines, rehabilitation expenses, assistive technologies, transport, caregiver time, and the burden of repeated visits. These economic constraints are especially acute for women and children with disabilities living in poverty or in rural areas, where the intersection of disability with gender inequality, rural residence, age, and chronic conditions compounds exclusion and amplifies vulnerability to unmet needs and catastrophic health expenditure.</p>
<p>Communication failures represent another layer that physical accessibility upgrades cannot touch. The absence of sign-language interpretation, the lack of materials in Braille or alternative formats, and poor provider communication skills limit informed consent and erode trust between patients and health workers. Stigma, discrimination, negative provider attitudes, lack of privacy, and low disability competence discourage care-seeking and worsen patient experiences across every domain of primary health care, including sexual and reproductive health, maternal health, child health, non-communicable disease management, mental health care, rehabilitation referrals, assistive technology access, and emergency response. Weak referral systems and limited rehabilitation capacity then entrench exclusion even after a successful initial contact with the health system. In short, the commentary argues, a person with a disability may navigate an accessible entrance only to encounter a facility that cannot communicate with them, cannot afford to treat them, and cannot refer them onward.</p>
<p>At the heart of the paper&#8217;s argument is a powerful conceptual critique: many health systems in the region are designed around an implicit &#8216;standard patient&#8217;—one who can see, hear, move independently, communicate without support, read written information unaided, travel easily to facilities, pay out-of-pocket costs without hardship, and advocate for themselves. This default model systematically excludes persons with diverse mobility, sensory, communication, cognitive, psychosocial, and support needs. Addressing only physical access, the authors warn, risks perpetuating inequity. Instead, disability inclusion must be treated as a core design principle for primary health care and universal health coverage, not an optional enhancement reserved for donor-funded pilot projects or charitable services.</p>
<p>The commentary makes a strong case that primary health care is the most appropriate and equity-oriented platform for disability-inclusive care in sub-Saharan Africa, because it is the level at which universal health coverage becomes meaningful for households and communities. Persons with disabilities have greater health needs and face systematically higher risks of exclusion from coverage, quality care, and affordability, making their inclusion essential to realizing universal health coverage. Integrated primary care can support early identification of disability-related needs, inclusive health promotion, accessible communication, respectful care, immunization, maternal and child health, and sexual and reproductive health and rights. It also serves as a critical entry point for non-communicable disease and mental health care, areas where persons with disabilities often experience unmet needs and poorer service quality.</p>
<p>Concrete examples from across the continent illustrate both progress and persistent gaps. Community health workers and rural providers report that persons with disabilities face geographic, financial, attitudinal, and communication barriers, underscoring the need for disability-sensitive outreach and health education. Evidence from Ghana shows that improving primary care for persons with disabilities requires more affordable services, greater provider availability, better system navigation support, and disability-friendly infrastructure and equipment. In South Africa, efforts to embed rehabilitation referral recommendations into national primary care treatment guidelines demonstrate how standardized pathways from first contact to rehabilitation can strengthen service delivery and increase referrals, although gaps in referral pathways, assistive device availability, and provider capacity persist in rural districts. These experiences suggest that inclusion succeeds when it is woven into routine service functions rather than bolted on as a parallel program.</p>
<p>The paper&#8217;s most consequential reframing, however, moves the conversation from access barriers to system accountability. What is not measured, funded, supervised, and monitored, the authors argue, remains invisible to planners, facility managers, and universal health coverage reforms. Interventions to date have often been fragmented and insufficiently integrated into routine performance systems. Genuine accountability requires disability-disaggregated data in routine health information systems, service readiness assessments, facility accessibility audits, inclusive quality-of-care indicators, health worker training, supportive supervision, referral tracking and follow-up, accessible complaints mechanisms, reasonable accommodation, and accessible communication. Financing must explicitly cover rehabilitation services and assistive technologies, because services that are not budgeted are unlikely to be sustained. Without these elements, persons with disabilities remain uncounted in monitoring frameworks and unaccounted for in resource allocation decisions.</p>
<p>Crucially, the commentary insists that accountability cannot be achieved without the meaningful participation of persons with disabilities and their representative organizations in health planning, facility assessment, monitoring, evaluation, service redesign, and policy development. Participation must not be reduced to symbolic consultation. Persons with disabilities are best placed to identify hidden barriers within services, test usability in real-world contexts, and hold systems accountable for change, ensuring that reforms are grounded in lived experience rather than assumptions or external perspectives. The authors also call for disability inclusion to be embedded in emergency preparedness, outbreak response, conflict and displacement responses, and climate-related disaster planning, noting evidence that persons with disabilities were largely overlooked in African COVID-19 responses and experienced exacerbated access barriers during the pandemic.</p>
<p>The policy agenda that emerges from the analysis is practical and specific. Ministries and districts should integrate disability-disaggregated indicators into primary care information systems and universal health coverage monitoring so that gaps in coverage, quality, and financial protection become visible and actionable. Facility managers can use these data to prioritize progressive accessibility upgrades—ramps, pathways, toilets, signage, and adapted examination spaces—guided by structured audits that quantify gaps and identify low- and medium-cost improvements. Communication accessibility and reasonable accommodation should be addressed alongside the built environment, supported by practical tools that help staff identify and address communication barriers. Rights-based disability training should be institutionalized for all cadres of health workers, tackling negative attitudes while building concrete skills in accommodation, informed consent, and referral. Rehabilitation and assistive technology should be planned and financed as integral primary care functions, and financial protection reforms must explicitly include rehabilitation, assistive products, and transport, given consistent evidence that direct and indirect costs are major barriers to needed care. Disability-inclusive primary health care, the authors conclude, is not a niche agenda. It is a practical and ethical benchmark for whether health systems across sub-Saharan Africa are becoming more just, more responsive, and more truly universal—and a clear measure of whether universal health coverage reforms are being implemented in meaningful rather than rhetorical ways.</p>
<p><strong>Subject of Research:</strong> Disability-inclusive primary health care and health equity in sub-Saharan Africa</p>
<p><strong>Article Title:</strong> Beyond physical access: disability-inclusive primary health care as a test of health equity in Sub-Saharan Africa</p>
<p><strong>Article References:</strong> Mohamed, M. D., Abdullahi, Y. B., Hassan, A. A., Ibrahim, I. O., Sudi, L. A., &amp; Rashid, N. A. S. (2026). Beyond physical access: disability-inclusive primary health care as a test of health equity in Sub-Saharan Africa. <em>International Journal for Equity in Health, 25</em>(1), Article 217. <a href="https://doi.org/10.1186/s12939-026-03000-z" rel="noopener noreferrer">https://doi.org/10.1186/s12939-026-03000-z</a></p>
<p><strong>Image Credits:</strong> AI Generated</p>
<p><strong>DOI:</strong> <a href="https://doi.org/10.1186/s12939-026-03000-z" rel="noopener noreferrer">10.1186/s12939-026-03000-z</a></p>
<p><strong>Keywords:</strong> disability inclusion, primary health care, health equity, universal health coverage, sub-Saharan Africa, health systems, assistive technology, rehabilitation, health financing, disability-disaggregated data, health workforce training, patient participation</p>
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