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	<title>Care &#8211; Science</title>
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	<title>Care &#8211; Science</title>
	<link>https://scienmag.com</link>
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		<title>Morality, voices, and self at the edge of reality: a narrative analysis of delusional experiences and pathways to care in schizophrenia</title>
		<link>https://scienmag.com/morality-voices-and-self-at-the-edge-of-reality-a-narrative-analysis-of-delusional-experiences-and-pathways-to-care-in-schizophrenia/</link>
		
		<dc:creator><![CDATA[Glenn Wilkins]]></dc:creator>
		<pubDate>Fri, 11 Sep 2026 23:42:46 +0000</pubDate>
				<category><![CDATA[Social Science]]></category>
		<category><![CDATA[analysis]]></category>
		<category><![CDATA[auditory hallucinations and self-identity]]></category>
		<category><![CDATA[Care]]></category>
		<category><![CDATA[delusional]]></category>
		<category><![CDATA[delusional experiences and moral world]]></category>
		<category><![CDATA[edge]]></category>
		<category><![CDATA[experiences]]></category>
		<category><![CDATA[meaning-making in schizophrenia]]></category>
		<category><![CDATA[moral implications of voices and delusions]]></category>
		<category><![CDATA[Morality]]></category>
		<category><![CDATA[narrative]]></category>
		<category><![CDATA[narrative analysis in mental health research]]></category>
		<category><![CDATA[pathways]]></category>
		<category><![CDATA[pathways to mental health care in psychosis]]></category>
		<category><![CDATA[qualitative analysis of first-person psychiatric accounts]]></category>
		<category><![CDATA[reality]]></category>
		<category><![CDATA[schizophrenia]]></category>
		<category><![CDATA[Schizophrenia patient narratives]]></category>
		<category><![CDATA[self]]></category>
		<category><![CDATA[self-concept disturbances in psychosis]]></category>
		<category><![CDATA[subjective experiences of psychosis]]></category>
		<category><![CDATA[understanding psychotic symptoms beyond clinical scales]]></category>
		<category><![CDATA[voices]]></category>
		<guid isPermaLink="false">https://scienmag.com/?p=193134</guid>

					<description><![CDATA[Schizophrenia has long been described through the language of symptoms, scales, and diagnostic checklists, yet a growing body of research argues that this vocabulary misses something essential about what it is actually like to live with the condition. A new]]></description>
										<content:encoded><![CDATA[<p>Schizophrenia has long been described through the language of symptoms, scales, and diagnostic checklists, yet a growing body of research argues that this vocabulary misses something essential about what it is actually like to live with the condition. A new narrative analysis published in npj Schizophrenia examines how people with schizophrenia describe delusional experiences, auditory hallucinations, and disturbances of the self, and how these subjective realities shape the paths they take toward care. The study, titled &#8220;Morality, voices, and self at the edge of reality: a narrative analysis of delusional experiences and pathways to care in schizophrenia,&#8221; positions first-person accounts not as unreliable noise around clinical data but as the primary evidence through which the structure of psychotic experience can be understood.</p>
<p>The central premise of the work is that delusions and voices are not simply false beliefs or misfiring perceptions to be catalogued and eliminated. Instead, they are embedded in a person&#8217;s moral world, their relationships, and their sense of who they are. Narrative analysis, the methodological approach employed in the research, treats the stories people tell about their experiences as structured accounts that reveal how meaning is made, broken, and remade. When a person describes hearing accusatory voices or believing they are being persecuted, the content of those experiences frequently carries moral weight: voices judge, condemn, exonerate, and command; delusions cast the self as victim, savior, sinner, or chosen one. Reading these accounts closely, the researchers argue, exposes a moral architecture within psychosis that standard symptom measures rarely capture.</p>
<p>This moral dimension matters clinically because it shapes behavior in ways that influence pathways to care. A person who hears voices that frame them as wicked may hide the experience out of shame, delaying contact with services. Another who interprets their persecution as divine testing may seek help first from religious leaders rather than psychiatrists. Families, communities, and cultures supply the interpretive frames through which unusual experiences are first understood, and those frames determine whether the first step toward treatment leads to a clinic, a place of worship, a traditional healer, or an emergency room. By reconstructing these narratives, the study illuminates why durations of untreated psychosis vary so widely and why early intervention efforts succeed or fail in different populations.</p>
<p>The question of the self runs through the entire analysis. In phenomenological psychiatry, disturbances of the basic sense of self, sometimes called ipseity disturbance, are considered a core feature of the schizophrenia spectrum rather than a byproduct of symptoms. The narrative accounts examined in the study reflect this: people describe feeling that their thoughts are no longer their own, that the boundary between self and world has become porous, or that they have become a different person entirely. Delusions of control, thought insertion, and referential thinking can all be read as attempts to restore coherence to a self that no longer feels unified. In this reading, a delusion is not merely an incorrect belief but a narrative repair job, an effort to stitch together an experience of selfhood that has come apart at the seams.</p>
<p>Auditory hallucinations receive particularly rich treatment in this framework. Contemporary research on voices has moved decisively away from viewing them as meaningless noise, documenting instead that voices possess identities, genders, emotional tones, and characteristic relationships with the hearer. Some voices are protective, some persecutory, some commanding. The relational quality of voices, the fact that hearing voices is often structurally similar to being in a social relationship, has prompted therapeutic innovations such as avatar therapy and relating-based approaches, in which patients engage with their voices rather than simply suppressing them. Narrative analysis deepens this perspective by showing how voice-hearers themselves narrate the origins, intentions, and moral stances of their voices, and how those narrations change over time and across treatment.</p>
<p>The pathways-to-care component of the study connects these subjective accounts to the practical machinery of mental health systems. Pathways to care research maps the sequence of contacts a person makes between the onset of symptoms and the receipt of specialist treatment, identifying gatekeepers, delays, and drop-off points. Combining this mapping with narrative analysis is methodologically significant: it means delays in care are not treated as administrative problems alone but as outcomes of meaning-making. A belief that one&#8217;s experiences are spiritual rather than psychiatric, or a fear of stigma and coercive treatment, or a voice that commands silence, each constitutes a narrative reason for delay. Understanding care pathways therefore requires understanding the stories that guide behavior before any clinician enters the picture.</p>
<p>The implications for clinical practice are concrete. If delusions serve narrative and moral functions, then treatment that addresses only the truth-value of beliefs, challenging them as factually wrong, may leave the underlying existential concerns intact and may damage the therapeutic alliance in the process. Approaches such as Cognitive Behavioral Therapy for psychosis, Open Dialogue, and need-adapted treatment all share an orientation toward meaning: they ask what a symptom does for a person, what it communicates, and how it fits into their life story, rather than treating it purely as pathology to be eliminated. The study&#8217;s findings lend narrative support to these approaches, suggesting that recovery is often experienced not as the disappearance of unusual experiences but as the reintegration of those experiences into a livable, coherent self-narrative.</p>
<p>The research also carries weight for the ongoing debate over how psychosis should be classified and understood. The diagnostic manuals, DSM and ICD, operationalize schizophrenia through symptom checklists that have proven reliable but whose validity as descriptions of lived experience has been repeatedly questioned. Movements such as phenomenologically oriented psychopathology, Hearing Voices Networks, and the broader epistemic justice agenda in mental health argue that service users&#8217; own accounts constitute a form of expertise that psychiatry has historically undervalued. A narrative analysis of the kind presented here aligns with that agenda, demonstrating that rigorous qualitative methods can extract structured, generalizable insights from first-person experience without reducing it to symptom counts.</p>
<p>Culturally, the study&#8217;s framing invites clinicians and researchers to attend to the moral vocabularies of the communities they serve. Experiences that Western psychiatry codes as hallucinations and delusions are, in many traditions, interpreted as visions, spirit encounters, ancestral communication, or spiritual crisis. These interpretations are not inherently pathological, and in some cases they provide meaning and social support that aid recovery; in others, they delay needed treatment. The task the research sets for mental health systems is neither to impose biomedical interpretation nor to defer entirely to traditional ones, but to understand how a person&#8217;s interpretive community shapes their narrative of distress, and to build pathways to care that engage rather than dismiss those narratives.</p>
<p>Ultimately, the study reframes schizophrenia at what it calls the edge of reality: a condition in which the boundaries between self and world, inner voice and external voice, moral failing and illness, become objects of struggle and reconstruction. Its contribution lies in showing that delusions and voices, far from being incomprehensible outputs of a broken brain, are intelligible human responses to a destabilized sense of self, told in stories that deserve careful listening. For a field increasingly interested in personalized, meaning-sensitive care, the message is direct: the shortest route to understanding psychosis, and to shortening the often painful journey into treatment, may begin with the patient&#8217;s own account of what happened to them and who they became along the way.</p>
<p>Qualitative approaches of this kind complement rather than replace quantitative psychiatry. Where rating scales quantify how severe a symptom is, narrative methods address why an experience matters to the person having it, and the two kinds of information can inform each other in treatment planning.</p>
<p>The emphasis on morality in psychotic content also connects with long-standing observations that themes of guilt, punishment, and judgment appear frequently in both delusions and voice content across cultures. This recurrence suggests that psychotic experiences often recruit the same evaluative capacities people use in ordinary social life, which may explain why they feel so personally significant and so difficult to dismiss.</p>
<p>For early intervention services, the practical lesson is that first contact often depends on whoever the person trusts most at the moment of crisis. Training gatekeepers, including clergy, family members, and primary care staff, to recognize distress and respond without judgment may shorten delays more effectively than campaigns aimed solely at the individual experiencing symptoms.</p>
<p>Finally, the study underscores that recovery narratives are not fixed. As treatment and life circumstances change, people frequently revise the meaning they assign to their voices and beliefs, and clinicians who attend to these revisions can support a more coherent and livable account of self over time.</p>
<p><strong>Subject of Research:</strong> Morality, voices, and self at the edge of reality: a narrative analysis of delusional experiences and pathways to care in schizophrenia</p>
<p><strong>Article Title:</strong> Morality, voices, and self at the edge of reality: a narrative analysis of delusional experiences and pathways to care in schizophrenia</p>
<p><strong>Article References:</strong> Maronchuk, N., Paul, J. L., Post, F., Nomoto, K., Rubinstein, E. B., Mizuno, Y., Shirakura, M., Tomiyama, S., Tutzer, F., Uchida, H., &amp; Hofer, A. (2026). Morality, voices, and self at the edge of reality: a narrative analysis of delusional experiences and pathways to care in schizophrenia. <em>Schizophrenia</em>. <a href="https://doi.org/10.1038/s41537-026-00800-8" rel="noopener noreferrer">https://doi.org/10.1038/s41537-026-00800-8</a></p>
<p><strong>Image Credits:</strong> AI Generated</p>
<p><strong>DOI:</strong> <a href="https://doi.org/10.1038/s41537-026-00800-8" rel="noopener noreferrer">10.1038/s41537-026-00800-8</a></p>
<p><strong>Keywords:</strong> Morality, voices, self, edge, reality, narrative, analysis, delusional, experiences, pathways, care, schizophrenia</p>
]]></content:encoded>
					
		
		
		<post-id xmlns="com-wordpress:feed-additions:1">193134</post-id>	</item>
		<item>
		<title>Occupational Therapists as Social Prescribers: Insights from Swedish Primary Care</title>
		<link>https://scienmag.com/occupational-therapists-as-social-prescribers-insights-from-swedish-primary-care/</link>
		
		<dc:creator><![CDATA[Ophelia Keating]]></dc:creator>
		<pubDate>Thu, 03 Sep 2026 16:39:34 +0000</pubDate>
				<category><![CDATA[Medicine]]></category>
		<category><![CDATA[aging population social needs]]></category>
		<category><![CDATA[Care]]></category>
		<category><![CDATA[community-based mental health interventions]]></category>
		<category><![CDATA[Insights]]></category>
		<category><![CDATA[loneliness in older adults]]></category>
		<category><![CDATA[Occupational]]></category>
		<category><![CDATA[occupational imbalance and deprivation]]></category>
		<category><![CDATA[occupational therapists role in social health]]></category>
		<category><![CDATA[Prescribers]]></category>
		<category><![CDATA[primary]]></category>
		<category><![CDATA[primary care innovative practices]]></category>
		<category><![CDATA[public health and social connectedness]]></category>
		<category><![CDATA[qualitative research in occupational therapy]]></category>
		<category><![CDATA[Scientific Research]]></category>
		<category><![CDATA[social]]></category>
		<category><![CDATA[social isolation and health outcomes]]></category>
		<category><![CDATA[social prescribing implementation]]></category>
		<category><![CDATA[social prescribing in occupational therapy]]></category>
		<category><![CDATA[Swedish]]></category>
		<category><![CDATA[Swedish primary care mental health]]></category>
		<category><![CDATA[Therapists]]></category>
		<guid isPermaLink="false">https://scienmag.com/?p=186439</guid>

					<description><![CDATA[Loneliness has quietly become one of the most pressing public health problems of our time, affecting roughly one in six people worldwide and carrying measurable consequences for both physical and mental health. Defined as the perception that one's current social]]></description>
										<content:encoded><![CDATA[<p>Loneliness has quietly become one of the most pressing public health problems of our time, affecting roughly one in six people worldwide and carrying measurable consequences for both physical and mental health. Defined as the perception that one&#8217;s current social life falls short of one&#8217;s social needs, loneliness is particularly prevalent among older adults, who often face the loss of loved ones, declining health, and shrinking social networks. Yet despite its reach, loneliness has received strikingly little attention in occupational therapy research and clinical practice, even though it connects directly to familiar concepts in the field such as occupational imbalance and deprivation. A new qualitative study from Sweden, published in the Scandinavian Journal of Occupational Therapy, now offers one of the first detailed looks at what happens when occupational therapists in primary care take on the role of social prescribers, and the results reveal both remarkable promise and sobering constraints.</p>
<p>The study emerges from the Social Prescribing in Sweden project, known as SPiS, a research initiative led from Umeå University that has pioneered the testing of social prescribing in Swedish primary care. Social prescribing, an approach that has gained global interest over the past decade, connects patients to non-medical community resources in line with their individual needs, ranging from simple signposting to intensive, personalized support. Unlike the English model, where dedicated link workers carry out the process, the Swedish model embeds the prescriber role within existing primary care staff, and at many participating centers occupational therapists took on this role as an extension of their daily work. The model itself, co-developed with healthcare providers and municipalities starting in 2018 and grounded in the Person-Environment-Occupation-Performance framework, follows a structured four-step process: screening, assessment, prescription, and follow-up.</p>
<p>The mechanics of the model are deceptively simple. All clinical staff at participating primary care centers ask every client aged 65 or older a standardized question: &#8220;Are you troubled by loneliness?&#8221; Those who confirm loneliness and express interest are referred internally to a social prescriber, often an occupational therapist, who conducts an in-depth assessment of the client&#8217;s daily life, needs, and interests. The assessment covers preferences for group size, timing, frequency, whether activities should be online or in person, and any activities the person wishes to avoid. From this, the prescriber and client develop an activity profile, and a physical paper prescription is written for a specific ongoing social activity in the local community, complete with participation goals and follow-up dates. A telephone follow-up occurs three weeks later, and a face-to-face review follows at three months, allowing adjustments to be made.</p>
<p>To understand how this plays out in practice, the research team conducted semi-structured digital interviews with ten occupational therapists, all women, working in urban and rural centers across Sweden, with clinical experience ranging from two to fourteen years in primary care. The interviews were analyzed using reflexive thematic analysis, and preliminary findings were shared with the informants in a member-checking process to strengthen the credibility of the conclusions. The analysis produced three overarching themes that together paint a nuanced picture of a profession discovering both a natural fit and a difficult boundary.</p>
<p>The first theme, captured in an informant&#8217;s remark that &#8220;it is a part of our basics, actually,&#8221; reflects how strongly the model aligns with occupational therapy&#8217;s core values of activity, participation, and meaningfulness. The therapists described how social life had long hovered in the background of their client interactions without ever being actively addressed; the model made this implicit focus explicit. They saw themselves as uniquely trained for the assessment step, drawing on their holistic view of activity, person, and environment. As one informant put it, it is easy for someone else to suggest playing pétanque, but that suggestion may fail entirely if functional limitations, environmental barriers, and the individual&#8217;s broader life situation are not all taken into account. This multidimensional assessment expertise, the informants argued, is what distinguishes occupational therapists from other health professions and enables genuinely tailored prescriptions.</p>
<p>The second theme, however, exposes the friction of turning professional philosophy into everyday practice: the challenge of matching individual assessments with a fragmented and often sparse supply of local social activities. Therapists described hunting for activity information on poorly updated websites and outdated contact lists as a kind of &#8220;detective work&#8221; that consumed time they did not have in resource-strained primary care settings governed by efficiency norms. One informant lamented the difficulty of being &#8220;the spider in the web&#8221; who keeps track of everything available. In rural areas, the scarcity of options was so acute that some therapists hesitated to initiate the process at all, and some older adults had misunderstood the model, expecting primary care to create new activities specifically for them rather than matching them to existing ones.</p>
<p>Beneath these practical hurdles lay a deeper emotional burden: the fear of letting lonely older adults down. Several informants worried about raising false hopes, with one confessing she was afraid clients might &#8220;feel even more lonely after they have met me.&#8221; Others cautioned that recommending a social activity carries real risk, since some contacts and settings could prove bad for a vulnerable person, echoing what the literature calls the dark side of occupation. Interestingly, some therapists resolved this pressure by reframing their role from expert to facilitator, sitting down with clients at the computer and searching together, which transformed prescription-writing into a collaborative, brainstorming process and dissolved the myth of the perfect match. Others coped by partnering with municipalities and civil society organizations to maintain continuously updated activity folders at their centers.</p>
<p>The third theme addressed the gap between receiving a prescription and actually participating. The therapists emphasized that loneliness is not a quick fix and that a prescription for dancing, for example, only becomes meaningful when the barriers preventing the client from dancing are addressed as part of the prescription itself. Support could take many forms: prescribing an electric wheelchair to enable mobility, offering motivational and emotional support for clients anxious about group settings, arranging transportation, recruiting companions for first visits, and mobilizing the client&#8217;s own informal networks of relatives and neighbors. At the same time, the informants warned against overextending the role, describing loneliness as &#8220;a big deep pit&#8221; and stressing the need for clear boundaries, since taking on too much within current primary care resources could leave prescribers feeling swallowed by the complexity of the task.</p>
<p>The study&#8217;s conclusions carry weight for health systems far beyond Sweden. The authors argue that occupational therapists are, in many ways, well positioned to contribute meaningfully to social prescribing, and that the approach may even strengthen the profession by refocusing attention on foundational values of meaningful activity and social connectedness that biomedical and market-driven healthcare models have pushed aside. But realizing the model&#8217;s potential, they conclude, requires acknowledging the true complexity of loneliness and social activities, lowering thresholds for social participation, and fostering collaboration across organizational and professional boundaries. In a world where loneliness is now recognized by the World Health Organization as a global health concern, the Swedish experience suggests that the prescription pad may need a second column, one written not for pills, but for people, places, and shared purpose.</p>
<p><strong>Subject of Research:</strong> Occupational Therapists as Social Prescribers: Insights from Swedish Primary Care</p>
<p><strong>Article Title:</strong> Occupational Therapists as Social Prescribers: Insights from Swedish Primary Care</p>
<p><strong>Article References:</strong> Viklund, E. W., Degerstedt, F., Jonsson, F., Lundgren, A. S., &amp; Nilsson, I. (2026). Occupational Therapists as Social Prescribers: Insights from Swedish Primary Care. <em>Scandinavian Journal of Occupational Therapy, 33</em>(1), Article 2. <a href="https://doi.org/10.1007/s44474-026-00002-6" rel="noopener noreferrer">https://doi.org/10.1007/s44474-026-00002-6</a></p>
<p><strong>Image Credits:</strong> AI Generated</p>
<p><strong>DOI:</strong> <a href="https://doi.org/10.1007/s44474-026-00002-6" rel="noopener noreferrer">10.1007/s44474-026-00002-6</a></p>
<p><strong>Keywords:</strong> Occupational, Therapists, Social, Prescribers, Insights, Swedish, Primary, Care, scientific research</p>
]]></content:encoded>
					
		
		
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