Newspaper reporting of NHS Cancer Drugs Fund misleading

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An analysis of UK newspaper reporting of the NHS Cancer Drugs Fund (CDF) between 2010 and 2015 shows that despite some critical analysis, the mostly positive stories are likely to have contributed to the CDF's continuation, despite mounting evidence of its ineffectiveness. Close to £1.4 billion in total has been spent through the CDF which has subsequently been reconfigured and is now under the control of the National Institute for Health and Care Excellence (NICE).

The research, published by the Journal of the Royal Society of Medicine, was based on stories in nine national newspapers in the UK. As well as looking at whether stories were positive, neutral or negative, the researchers from the Institute of Cancer Policy, King's College London and the University of Bristol measured the influence of each newspaper's reporting of the CDF, based on circulation and number of stories.

Lead researcher Dr Grant Lewison said: "Our analysis showed there was three times as much coverage in favour of the CDF as against. Media reports did not scrutinise the discrepancy between those drugs available through the CDF and those diseases with the greatest health burden, the toxicities of the medicines, nor the opportunity cost of the CDF for other cancer treatments." He added: "Access at any cost was a clear totem around which the pro-CDF media based its coverage. The views of experts who pointed out the intrinsic unfairness of the CDF or the lack of efficacy of, and unpleasant side effects from, many of the drugs seem to have counted for little against the human interest stories of individual patients."

The preponderance of stories on chemotherapy, compared with surgery and radiotherapy, has, according to the researchers, probably contributed to a strong public perception that the best way to help cancer patients and improve outcomes is to allow them access to new (and expensive) medicines, whose performance is often hyped and gives rise to unreasonable expectations.

The study also draws attention to the failure of many public organisations, including charitable research funders in the UK, to publicise the shortcomings of the CDF. Co-researcher Dr Charlotte Chamberlain, a palliative care doctor, said: "By uncritically reporting the assumed benefit of increased access to anti-cancer drugs we do our patients a disservice. The price of the hype for pharmaceuticals in the treatment of cancer may cost patients in a number of ways: through potential side effects, by offering false hope without 'meaningful clinical benefit', and preventing investigation of, and investment in, other treatment approaches. In an era of 'alternative facts', journalists, health professionals and cancer charities have a responsibility to interrogate claims of 'the next big thing'."

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The Journal of the Royal Society of Medicine (JRSM) is a leading voice in the UK and internationally for medicine and healthcare. Published continuously since 1809, JRSM features scholarly comment and clinical research. JRSM is editorially independent from the Royal Society of Medicine, and its editor is Dr Kamran Abbasi.

JRSM is a journal of the Royal Society of Medicine and it is published by SAGE Publishing.

Sara Miller McCune founded SAGE Publishing in 1965 to support the dissemination of usable knowledge and educate a global community. SAGE is a leading international provider of innovative, high-quality content publishing more than 1000 journals and over 800 new books each year, spanning a wide range of subject areas. A growing selection of library products includes archives, data, case studies and video. SAGE remains majority owned by our founder and after her lifetime will become owned by a charitable trust that secures the company's continued independence. Principal offices are located in Los Angeles, London, New Delhi, Singapore, Washington DC and Melbourne. http://www.sagepublishing.com

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http://dx.doi.org/10.1177/0141076818796802

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