First free comprehensive data facility for patient-centered care
The first free and openly-available comprehensive data resource for international measures relating to patient experience and person centred care has been launched, providing a 'one-stop' website for commissioners, health managers, researchers and others.
Measures for Person Centred Coordinated Care has been compiled by researchers from Plymouth University Peninsula Schools of Medicine and Dentistry. The project has been supported by NHS England, the National Institute for Health Research Collaboration for Applied Health Research and Care South West Peninsula (NIHR PenCLAHRC), the South West Academic Health Science Network and the Royal Devon and Exeter NHS Foundation Trust.
The aim of the project is to deliver a portfolio of intelligence about measures for Person Centred Coordinated Care ("P3C") for people with Long-Term Conditions (LTCs), multiple-LTCs, and those at the End of their Life (EoL). One component of this project is to provide a compendium of measures – defined as Patient Reported Outcome Measures (PROMs) and Patient Reported Experience Measures (PREMs) – that can be utilised within programmes that aim to deliver or evaluate P3C in target populations.
The website provides a user-friendly front-end to that compendium, with the aim to act as a gateway to measures for person centred care. The other key element of this project includes a guide developed to support the delivery and evaluation of Person Centred Coordinated Care which will be launched this autumn.
The website can be visited at http://www.pc3.org.uk.
Dr Helen Lloyd from Plymouth University led the team who delivered the project. Helen, NIHR PenCLAHRC Senior Research Fellow, said: "Data relating to the patient experience and patient centred care sit at the heart of care policy and delivery, yet until now the resources required by commissioners, managers and those carrying out research to improve and enhance services have been disparate and disjointed. Measures for Person Centred Coordinated Care brings together the vast majority of measures and data 'under one roof', with the intention of making it easier to source information for those who need it."
About Plymouth University Peninsula Schools of Medicine and Dentistry
Plymouth University Peninsula Schools of Medicine and Dentistry (PUPSMD http://www.plymouth.ac.uk/peninsula) focuses on medical, dental and biomedical education and research. In education it takes the lead in using innovative, evidence-based learning techniques which nurture future doctors, dentists and biomedical scientists who are clinically excellent, have immense empathy for those in their care, and who are well-prepared for roles in an ever-changing health service. Research covers the areas of clinical neurosciences; cancer; inflammation, infection and immunity; diagnostics; genomics; stratification; prevention; personalised integrated care; and novel health technologies. The Research Excellence Framework 2014 ranked the organisation top in the UK for the quality of its research outputs. It is one of the lead academic partners in the Alzheimer's Research UK South West Research Network, and one of four Research Centres of Excellence for charity Brain Tumour Research. PU PSMD holds the Athena SWAN Bronze Award. The awards recognise institutional and departmental commitment to advancing women's careers in science, technology, engineering, mathematics and medicine/dentistry in Higher Education and Research. The Plymouth University 'Shape the Future' Campaign is a strategic fundraising initiative to transform lives and make a real and lasting difference to our global society. It supports a number of projects including the Derriford Research Facility and Brain Tumour Research at Plymouth University. If you would like to support the Campaign you can find out more by visiting http://www.plymouth.ac.uk/campaign
The National Institute for Health Research (NIHR) is funded by the Department of Health to improve the health and wealth of the nation through research. Since its establishment in April 2006, the NIHR has transformed research in the NHS. It has increased the volume of applied health research for the benefit of patients and the public, driven faster translation of basic science discoveries into tangible benefits for patients and the economy, and developed and supported the people who conduct and contribute to applied health research. The NIHR plays a key role in the Government's strategy for economic growth, attracting investment by the life-sciences industries through its world-class infrastructure for health research. Together, the NIHR people, programmes, centres of excellence and systems represent the most integrated health research system in the world. For further information, visit the NIHR website (http://www.nihr.ac.uk).
The National Institute for Health Research Collaboration for Leadership in Applied Health Research and Care South West Peninsula (NIHR CLAHRC SWP/PenCLAHRC) aims to bring together local universities and their surrounding NHS organisations to test new treatments and new ways of working in specific clinical areas, to see if they are effective and appropriate for everyday use in the health service. Where potential improvements are identified PenCLAHRC helps NHS staff to incorporate them into their everyday working practices, so that patients across the local community receive a better standard of healthcare.
This article presents independent research funded by the National Institute for Health Research (NIHR). The views expressed are those of the author(s) and not necessarily those of the NHS, the NIHR or the Department of Health.